I have been diagnosed for 18 months now and have moved from Rasagaline to Amantadine and following 4 months of no perceived symptoms changes of left hand tremor and left leg, walking feeling weird, I was then put on Sinamet. It was an immediately noticeable change but has wained somewhat over a period of months. After watching a post on the topic of ‘what would you have done differently in the early stages of PD?’, where many PD sufferers replied to say they wish they had not just taken the meds they were prescribed as it was a default prescription. There is evidence to say continued use of CL (Sinamet) will bring on dyskinesia. So I have kept my Amantadine but reduced my Sinamet to twice a day instead of 3 times with no noticeable difference. I think I am going to try reducing again just to see what happens. Has anyone else experienced this or is scared of the future effects of taking these meds?
Hello Wayne … I am 71 and was diagnosed in June 2023. After trying two drugs that did not work I was put on Sinemet. 2 pills x 3 times a day. However I was having severe sleep issued and trialed coming off all medication for 2-3 months. But when playing Indoor bowls I lost my balance a number of times and fell over 8 times. So back on Sinemet and no more falls. I now take 2 pills at 7.30am and 2 pills at 1pm when I am bowling, with no evening dose. If I am not playing Indoor bowls I take no medication at all. This has worked perfectly for me and I am sleeping better.
I also take 1 pill a day of Rasagiline.
Steve2
Good to hear Steve! It just highlights how individual PD is. Best to experiment I guess!!
It is understandable to feel concerned about medication and side effects. Everyone’s experience of Parkinson’s and treatment can be different. It may help to talk through any changes with your specialist or Parkinson’s nurse before making adjustments. If you would like to chat with someone about this, our helpline is here on 0808 800 0303 or [email protected]
Parkinson’s UK Moderation Team