Morning Pokermid, I trust you are well
Hi Gill......I'll leave out the number.
As we parkies always answer that question with a "fine"
I will keep the status quo and say the same! I'm fine thank ou Gill.
Where have you been? Up the hill? or to the Palace?
only kidding Gill. How are you?
We had better disappear from here before we get booted off!
Poker
As we parkies always answer that question with a "fine"
I will keep the status quo and say the same! I'm fine thank ou Gill.
Where have you been? Up the hill? or to the Palace?
only kidding Gill. How are you?
We had better disappear from here before we get booted off!
Poker
Chat room?
If I were to go into any health shop, I could buy any amount of supplements, alternative medication and cures for the fat and thin for in growing toe nails to piles. I could mix them up in a dangerous concoction that would or could do me harm. And there is no control at the check out, nobody saying do not take this with that, and as we know overdosing on vitamins can be very bad for you.
So the favourable option is to get the recommendations from a man that has tried and tested the combination and knows how it works
I totally agree that we should be able to adjust our medication. There is only us that know how are bodies feel.
Earlier on in the year, my specialist added Mirapexin to my medication, I told him of my concerns but he reassured me it had no side effects. I don’t see him till February so I decided after a few months on it, that it did not suit me so I stopped taking it. And I am much better. Should I and people close to me suffered until February?, I don’t think so!!!!
As I said in my previous post, I have ordered all the supplement in readiness to start the PiP.
If I take out the additional postage for sending to Spain, the weekly cost is just over 5 pounds
Jaylew
So the favourable option is to get the recommendations from a man that has tried and tested the combination and knows how it works
I totally agree that we should be able to adjust our medication. There is only us that know how are bodies feel.
Earlier on in the year, my specialist added Mirapexin to my medication, I told him of my concerns but he reassured me it had no side effects. I don’t see him till February so I decided after a few months on it, that it did not suit me so I stopped taking it. And I am much better. Should I and people close to me suffered until February?, I don’t think so!!!!
As I said in my previous post, I have ordered all the supplement in readiness to start the PiP.
If I take out the additional postage for sending to Spain, the weekly cost is just over 5 pounds
Jaylew
Hi Kevin
A few points Id like to add (nicely!)
Firstly, although i understand your point re fiddling with meds, i think Jaylew got that one in a nutshell.
Secondly, you say you have read that people seemed devastated when they received a negative heli-p test as Chewy had made it sound like the Holy Grail..eradicate heli-p..cure PD. I assume my posting to Chewy re OH's negative result helped put this thinking in your head. I would like to make it clear to all that read this that after receiving the negative test, I sent Chewy a couple of private messages to discuss this. Chewy replied that he still felt the program would be beneficial. I have also emailed him to ask about following the program alongside regular PD meds and again he has not said you must stop these or cut them down, just that you may feel better and therefore be able to cut them down..not the same thing. As Pokermid pointed out, Chewy has always behaved with great integrity. He has never in my knowledge claimed to have a cure. The name of his program is Parkinsons IMPROVEMENT..and he may well be right...who knows.. but he is passionate enough about it to put a lot of time and effort into helping others.
I have emailed Chewy several times with questions re the PIP and have downloaded the enrolment forms. However, despite being keen we are on the fence at the moment but Chewy has never tried to pressurise, persuade, harrass with emails or use any other method to encourage us in that direction. Ultimately he is wise enough to know that these decisions are difficult and we all have choices to make in our own time.
Also Kevin the fact that you have pointed out a link showing that the PDS is researching into Helipylori and gut health surely shows they are taking it seriously.
At present OH has decided to just have an actimel and activia yoghurt daily and various vitamins and leave out the powders..he feels better for it and it can do no harm.
Away from PIP for a minute..its the same with CoEnQ10..yes, it's been said that a very high amount may help with PD progression...the PDS then advise not to do this as the longterm affects aren't yet known. OK so my view is take some CoEnQ10 at a lower level (Same as Westby) and it might help a bit..who knows? My point is, that without people coming up with things like the PIP and research re supplements etc what would we do? Just follow the medics like zombies..that may suit some people but not us.
I also think you are misjudging Chewy's character. He has not claimed any cure or aimed to profit from his program. If you check out my reply to AKN on Adrian's thread re aggravating symptoms, you will see the difference. For me anyone claiming a cure puts red mist before my eyes..and Chewy does not have this effect on me.
Kevin this is not an attack on you in any way, you obviously have your concerns. I am just pointing out my stance on this thread.
Best wishes
Carrot
A few points Id like to add (nicely!)
Firstly, although i understand your point re fiddling with meds, i think Jaylew got that one in a nutshell.
Secondly, you say you have read that people seemed devastated when they received a negative heli-p test as Chewy had made it sound like the Holy Grail..eradicate heli-p..cure PD. I assume my posting to Chewy re OH's negative result helped put this thinking in your head. I would like to make it clear to all that read this that after receiving the negative test, I sent Chewy a couple of private messages to discuss this. Chewy replied that he still felt the program would be beneficial. I have also emailed him to ask about following the program alongside regular PD meds and again he has not said you must stop these or cut them down, just that you may feel better and therefore be able to cut them down..not the same thing. As Pokermid pointed out, Chewy has always behaved with great integrity. He has never in my knowledge claimed to have a cure. The name of his program is Parkinsons IMPROVEMENT..and he may well be right...who knows.. but he is passionate enough about it to put a lot of time and effort into helping others.
I have emailed Chewy several times with questions re the PIP and have downloaded the enrolment forms. However, despite being keen we are on the fence at the moment but Chewy has never tried to pressurise, persuade, harrass with emails or use any other method to encourage us in that direction. Ultimately he is wise enough to know that these decisions are difficult and we all have choices to make in our own time.
Also Kevin the fact that you have pointed out a link showing that the PDS is researching into Helipylori and gut health surely shows they are taking it seriously.
At present OH has decided to just have an actimel and activia yoghurt daily and various vitamins and leave out the powders..he feels better for it and it can do no harm.
Away from PIP for a minute..its the same with CoEnQ10..yes, it's been said that a very high amount may help with PD progression...the PDS then advise not to do this as the longterm affects aren't yet known. OK so my view is take some CoEnQ10 at a lower level (Same as Westby) and it might help a bit..who knows? My point is, that without people coming up with things like the PIP and research re supplements etc what would we do? Just follow the medics like zombies..that may suit some people but not us.
I also think you are misjudging Chewy's character. He has not claimed any cure or aimed to profit from his program. If you check out my reply to AKN on Adrian's thread re aggravating symptoms, you will see the difference. For me anyone claiming a cure puts red mist before my eyes..and Chewy does not have this effect on me.
Kevin this is not an attack on you in any way, you obviously have your concerns. I am just pointing out my stance on this thread.
Best wishes
Carrot
Hi Poker
vodka and redbull is not a daily habit of mine thank you very much.
you say chewexpert has never answered a question?
what about the diabetic question that was raised and not responded to? who raised it? you....
tina x
vodka and redbull is not a daily habit of mine thank you very much.
you say chewexpert has never answered a question?
what about the diabetic question that was raised and not responded to? who raised it? you....
tina x
Hi Tina
What gave you the impression that my question comparing costs was aimed at you? You said Chewies PiP was expensive!! I disagree. In relation to some peoples smoking habits or alcohol consumption (including mine) the PiP diet is but a drop in the Ocean. As for my question regarding Diabetes.....Chewie answered in a PM and I also checked with my local pharmacist.
Why are you getting personnal Tina?
Poker
What gave you the impression that my question comparing costs was aimed at you? You said Chewies PiP was expensive!! I disagree. In relation to some peoples smoking habits or alcohol consumption (including mine) the PiP diet is but a drop in the Ocean. As for my question regarding Diabetes.....Chewie answered in a PM and I also checked with my local pharmacist.
Why are you getting personnal Tina?
Poker
To Chewie and all,
I think we have to remember that unfortunately participating in an open forum can sometimes create communication barriers and posts can be misinterpreted and often considered offensive. We'll always face this problem and there is no easy solution.
Chewie you say.....
When posts are removed as a result of a complaint it would be polite to tell the person complained about who has complained and on what grounds the complaint has been upheld. Otherwise reasonable discussion and comment can be anonymously suppressed.
I agree with you that it should be set procedure for an explanation to be provided but do also think that if a person wishes for their name to remain confidential then this should be respected to avoid any animosity or conflict on the forum which can lead to further upset. Unfortunately deleted posts do tend to affect the continuity of the thread and often cause it to come to an end, often leaving members feeling frustrated and their concerns or anxieties made worse. It can also leave the person whose posts been removed feeling violated and respect and trust is then questioned. You say that how can a reasonable discussion take place if removed threads aren't explained--this is true but unfortunately the moderators have to respect complaints and confidentiality.
Chewie I personally believe you are a respected valued member of the forum. Sometimes your posts seem irrelevant to the topic raised but i believe you are truly trying to help the person (you always make me smile) From taking with others i've found you've helped many people and at the end of the day we all know ourselves that we will always require medication but with improved life style and a healthy diet we can hopefully make living with Parkinson's more comfortable. I truly believe we are what we eat. We will never be able to please everyone and lets face it it would be a boring world if we was all the same.
So i say keep up the good work Chewie and don't be disheartened by complaints because after all we are all learning from each other all the time.
I have more than halved my meds in the last year and feel more in control of my life with Parkinsons now. I decided to do this myself and kept a drugs diary making small changes and carefully monitoring them. I informed my neurologist and he said he agrees we are the best judges of our bodies and how we respond to treatment and as long as we dont do drastic changes to our drug regimes we should be ok. If i hadnt adjusted my medication and played around with timings i dont think i would be here today because thats how out of control i felt.
Best wishes to you all and all the best for 2009!
QT
I think we have to remember that unfortunately participating in an open forum can sometimes create communication barriers and posts can be misinterpreted and often considered offensive. We'll always face this problem and there is no easy solution.
Chewie you say.....
When posts are removed as a result of a complaint it would be polite to tell the person complained about who has complained and on what grounds the complaint has been upheld. Otherwise reasonable discussion and comment can be anonymously suppressed.
I agree with you that it should be set procedure for an explanation to be provided but do also think that if a person wishes for their name to remain confidential then this should be respected to avoid any animosity or conflict on the forum which can lead to further upset. Unfortunately deleted posts do tend to affect the continuity of the thread and often cause it to come to an end, often leaving members feeling frustrated and their concerns or anxieties made worse. It can also leave the person whose posts been removed feeling violated and respect and trust is then questioned. You say that how can a reasonable discussion take place if removed threads aren't explained--this is true but unfortunately the moderators have to respect complaints and confidentiality.
Chewie I personally believe you are a respected valued member of the forum. Sometimes your posts seem irrelevant to the topic raised but i believe you are truly trying to help the person (you always make me smile) From taking with others i've found you've helped many people and at the end of the day we all know ourselves that we will always require medication but with improved life style and a healthy diet we can hopefully make living with Parkinson's more comfortable. I truly believe we are what we eat. We will never be able to please everyone and lets face it it would be a boring world if we was all the same.
So i say keep up the good work Chewie and don't be disheartened by complaints because after all we are all learning from each other all the time.
I have more than halved my meds in the last year and feel more in control of my life with Parkinsons now. I decided to do this myself and kept a drugs diary making small changes and carefully monitoring them. I informed my neurologist and he said he agrees we are the best judges of our bodies and how we respond to treatment and as long as we dont do drastic changes to our drug regimes we should be ok. If i hadnt adjusted my medication and played around with timings i dont think i would be here today because thats how out of control i felt.
Best wishes to you all and all the best for 2009!
QT
Carrot,
Thank you for that, and I do not wish to seem overly negative (despite Pokermid's comments). I have just notices that Chewexprt seems to have posted details of PIP everywhere on the forum, irrespective of the conversation thread, so I felt that a burst of realism would be in order. I apologise to those whom I have offended. It is just that I have tried many quack remedies, and some have had particularly unpleasent side effects. I note that nobody has referred to a dietician. Do people not have access to this service, which may actually maximise the potential value of the PIP? If not, perhaps the PDS campaigns department would be the people to contact.
Obviously, there is a great difference in standards in clinical support. I would not call mine "pill popping people in the pockets of drug companies". Most are very dedicated to their job, and their patients, and I'm sure would be rather disappointed at the way in which they are portrayed by certain members of the forum. If you do not like the service that you are getting, why not go the whole way and "name and shame" or, even better, complain to the GMC. Letting your dissatisfaction fester is doing nobody (including yourselves) and good and could be harmful. In these days of NHS "choice", if people were told of the "bad" doctors and PDNSs in advance, they could be avoied.
Thank you for that, and I do not wish to seem overly negative (despite Pokermid's comments). I have just notices that Chewexprt seems to have posted details of PIP everywhere on the forum, irrespective of the conversation thread, so I felt that a burst of realism would be in order. I apologise to those whom I have offended. It is just that I have tried many quack remedies, and some have had particularly unpleasent side effects. I note that nobody has referred to a dietician. Do people not have access to this service, which may actually maximise the potential value of the PIP? If not, perhaps the PDS campaigns department would be the people to contact.
Obviously, there is a great difference in standards in clinical support. I would not call mine "pill popping people in the pockets of drug companies". Most are very dedicated to their job, and their patients, and I'm sure would be rather disappointed at the way in which they are portrayed by certain members of the forum. If you do not like the service that you are getting, why not go the whole way and "name and shame" or, even better, complain to the GMC. Letting your dissatisfaction fester is doing nobody (including yourselves) and good and could be harmful. In these days of NHS "choice", if people were told of the "bad" doctors and PDNSs in advance, they could be avoied.
Interesting piece in The Guardian:
31/12/2008
The Guardian
By: Presswatch
Study finds no benefit in antioxidant pills
Antioxidant supplements do not reduce the risk of developing cancer, according to a trial involving more than 7,500 women conducted by Brigham and Women's Hospital in Boston, Massachusetts. "Supplementation with vitamin C, vitamin E, or betacarotene offers no overall benefits in the primary prevention of total cancer incidence or cancer mortality," the authors wrote in the Journal of the National Cancer Institute. "In our trial neither duration of treatment nor combination of the three antioxidant supplements had effects on overall fatal or nonfatal cancer events."
Although this is not directly relevant to Parkinson's, it does bring into doubt some of the claims for the benefits of antioxidants.
31/12/2008
The Guardian
By: Presswatch
Study finds no benefit in antioxidant pills
Antioxidant supplements do not reduce the risk of developing cancer, according to a trial involving more than 7,500 women conducted by Brigham and Women's Hospital in Boston, Massachusetts. "Supplementation with vitamin C, vitamin E, or betacarotene offers no overall benefits in the primary prevention of total cancer incidence or cancer mortality," the authors wrote in the Journal of the National Cancer Institute. "In our trial neither duration of treatment nor combination of the three antioxidant supplements had effects on overall fatal or nonfatal cancer events."
Although this is not directly relevant to Parkinson's, it does bring into doubt some of the claims for the benefits of antioxidants.
There is a large variety of anti-oxidants and unspecified information of the type posted here is designed to be unhelpful in order to boost the chances of the pharmaceutical industry to claim a cure at great profit to themselves. Simple things can work if applied in the right way at the right time. For example broccoli extract containing sulforaphane has been shown to be beneficial in the treatment of skin cancer but treatment at 90p a day is not hugely profitable so the industry will try to rubbish the claim.
Chewexpert,
Have you got some fanatical obsession with the pharmaceutical industry? You claim thet the PDS is in its pocket, that doctors are too keen on drug peddling and getting paid backhanders and now, you suggest that the negative results of a clinical rial is just a cover yup because they wouldn't make enough money? They're not perfect, but at least some of the drugs have positive effects.
Have you got some fanatical obsession with the pharmaceutical industry? You claim thet the PDS is in its pocket, that doctors are too keen on drug peddling and getting paid backhanders and now, you suggest that the negative results of a clinical rial is just a cover yup because they wouldn't make enough money? They're not perfect, but at least some of the drugs have positive effects.
-------------------------------------------------------------------------------------------------------------------
Obviously, there is a great difference in standards in clinical support. I would not call mine "pill popping people in the pockets of drug companies". Most are very dedicated to their job, and their patients, and I'm sure would be rather disappointed at the way in which they are portrayed by certain members of the forum. If you do not like the service that you are getting, why not go the whole way and "name and shame" or, even better, complain to the GMC. Letting your dissatisfaction fester is doing nobody (including yourselves) and good and could be harmful. In these days of NHS "choice", if people were told of the "bad" doctors and PDNSs in advance, they could be avoied.
--------------------------------------------------------------------------------------------------------------------
Kevin.
I have asked for referrals several times, and its only the last time in Feb 08 that my request was granted. I then had to wait until June for an appointment. The reason I asked to be referred to another Neuro was to get an alternative to my present medication. As I am about to take litigation against my present specialist, I thought it prudent to request a change. The new boy and his sidekick the PD nurse have completely c*cked up my med regime. More incompetence! So I do resent been lectured by you concerning “doing something about it”. I have reported it and I will keep on reporting it until something is done. You obviously have a good rapport with your Neuro.....I’m glad for you both. Please do not assume that everyone else has the same blessing. And do not think that because some people are complaining about the standard of care they are receiving that it is causing them to fester. Its causing pain and anxiety.
I think you are a typical example who believes the medical professionals should be elevated on their pedestals ever higher. I’m not doubting their dedication. Anyone can be dedicated, but it doesn’t mean that person is always competent or sensitive to certain situations. Most of these consultant specialists are intelligent and high trained physicians without a shred of compassion, understanding or urgency about them.
Poker
Obviously, there is a great difference in standards in clinical support. I would not call mine "pill popping people in the pockets of drug companies". Most are very dedicated to their job, and their patients, and I'm sure would be rather disappointed at the way in which they are portrayed by certain members of the forum. If you do not like the service that you are getting, why not go the whole way and "name and shame" or, even better, complain to the GMC. Letting your dissatisfaction fester is doing nobody (including yourselves) and good and could be harmful. In these days of NHS "choice", if people were told of the "bad" doctors and PDNSs in advance, they could be avoied.
--------------------------------------------------------------------------------------------------------------------
Kevin.
I have asked for referrals several times, and its only the last time in Feb 08 that my request was granted. I then had to wait until June for an appointment. The reason I asked to be referred to another Neuro was to get an alternative to my present medication. As I am about to take litigation against my present specialist, I thought it prudent to request a change. The new boy and his sidekick the PD nurse have completely c*cked up my med regime. More incompetence! So I do resent been lectured by you concerning “doing something about it”. I have reported it and I will keep on reporting it until something is done. You obviously have a good rapport with your Neuro.....I’m glad for you both. Please do not assume that everyone else has the same blessing. And do not think that because some people are complaining about the standard of care they are receiving that it is causing them to fester. Its causing pain and anxiety.
I think you are a typical example who believes the medical professionals should be elevated on their pedestals ever higher. I’m not doubting their dedication. Anyone can be dedicated, but it doesn’t mean that person is always competent or sensitive to certain situations. Most of these consultant specialists are intelligent and high trained physicians without a shred of compassion, understanding or urgency about them.
Poker
No Kevin that piece in the Guardian was not about Parkinsons it was about cancer and antioxidants. I have probably read more books about nutrition and cancer than you've had hot dinners and I really dont see why you felt that was interesting to post here. You are acting like 'a dog with a bone'.
Sorry but I'm not feeling to well today and your post upset me. If i want to read postings about cancer aswell as PD I'll go to a cancer website thanks.
Sorry but I'm not feeling to well today and your post upset me. If i want to read postings about cancer aswell as PD I'll go to a cancer website thanks.
Hello Kevin,
I had decided not to post anymore under this thread as I had said all I wanted to say. But you have written something under 'Chewexpert's' name at the top that needs correcting. You wrote that 'Chewexpert' had said words to the effect that the PDS was in the pockets of ...... No he did not and you have misquoted to boot! I suggest you re:read this thread to find out what the truth actually is. Chewexpert knows that the PDS gets funds through donations, collections and legacies and told me as much several weeks ago.
Adrian
I had decided not to post anymore under this thread as I had said all I wanted to say. But you have written something under 'Chewexpert's' name at the top that needs correcting. You wrote that 'Chewexpert' had said words to the effect that the PDS was in the pockets of ...... No he did not and you have misquoted to boot! I suggest you re:read this thread to find out what the truth actually is. Chewexpert knows that the PDS gets funds through donations, collections and legacies and told me as much several weeks ago.
Adrian
Dear all,
In reply to recent comments about my postings, the points that I wished to make are:
(i) not all drug companies are bad
(ii) the PDS is not all bad and actually does some good research (despite what most people seem to think)
(iii) some doctors actually know what they are doing (and, despite what is said, I do not hold them on a pedastal) and that it is important that there is a 2-way dialogue - they can learn more from you that you can from them.
(iv) Antioxidants may not be the answer to everything although they have been hailed as such by some people. I used the cancer study as an example and I'm sorry that it touched a raw nerve.
I posted previously on the "old" forum about a year ago and was houned out for my views. I thought that the development would have made the place a bit more liberal. Obviously not, and I am sorry to see this.
I therefore wish you all a happy 2009 and hope that eventually certain dictatorial members of your forum will actually allow some constructive debate. It is a great resource and it is a shame that it is spoiled by a few at the expense of the many.
Thanks and farewell.
In reply to recent comments about my postings, the points that I wished to make are:
(i) not all drug companies are bad
(ii) the PDS is not all bad and actually does some good research (despite what most people seem to think)
(iii) some doctors actually know what they are doing (and, despite what is said, I do not hold them on a pedastal) and that it is important that there is a 2-way dialogue - they can learn more from you that you can from them.
(iv) Antioxidants may not be the answer to everything although they have been hailed as such by some people. I used the cancer study as an example and I'm sorry that it touched a raw nerve.
I posted previously on the "old" forum about a year ago and was houned out for my views. I thought that the development would have made the place a bit more liberal. Obviously not, and I am sorry to see this.
I therefore wish you all a happy 2009 and hope that eventually certain dictatorial members of your forum will actually allow some constructive debate. It is a great resource and it is a shame that it is spoiled by a few at the expense of the many.
Thanks and farewell.
Kevin - a New Year's Peace offering
I really do feel sorry that this thread has become so inflammatory. I've just looked back to the first post you made on this thread. In your last post here you say that you just wanted to make some points and that's fair enough. Unfortunately, your first post came across as very demeaning towards Chewy (no more, no less than a balanced diet/nonsense, extremely dangerous). Perhaps if you had made your points in a politer way, people would have been less aggrieved. Often it's not what you say it's how you say it. I'm fairly new to the forum and dont know people very well. It's difficult sometimes when you read people's comments and you know nothing about them. It's helpful to know a little bit about who you are talking to eg rough age/pwp/friend/carer/length of diagnosis etc. It would be nice if you could put a note in the Meet and Greet section under Forum Profiles so we can learn a little more about you - obviously not obligatory!
I'm sorry for being short with you in my last posting. As I said I wasnt feeling well and reading all the arguing had upset me. My sister-in-law died of cancer after a year on The Gerson Therapy and, yes, your post did touch a raw nerve....not your fault.
All the best for the new year.
Carrot
I really do feel sorry that this thread has become so inflammatory. I've just looked back to the first post you made on this thread. In your last post here you say that you just wanted to make some points and that's fair enough. Unfortunately, your first post came across as very demeaning towards Chewy (no more, no less than a balanced diet/nonsense, extremely dangerous). Perhaps if you had made your points in a politer way, people would have been less aggrieved. Often it's not what you say it's how you say it. I'm fairly new to the forum and dont know people very well. It's difficult sometimes when you read people's comments and you know nothing about them. It's helpful to know a little bit about who you are talking to eg rough age/pwp/friend/carer/length of diagnosis etc. It would be nice if you could put a note in the Meet and Greet section under Forum Profiles so we can learn a little more about you - obviously not obligatory!
I'm sorry for being short with you in my last posting. As I said I wasnt feeling well and reading all the arguing had upset me. My sister-in-law died of cancer after a year on The Gerson Therapy and, yes, your post did touch a raw nerve....not your fault.
All the best for the new year.
Carrot
I too was a visitor to the site, for some time, before I actually made my first post some months ago.
I haven't added my two penn'orth to this thread for the following reason.
As I have said before, I am a member of two other forums, such as this, not to do with PD, where some people know each other and some know no one at all.
Often on these forums there were flare ups due to a difference of opinion. It wasn't the difference of opinion itself that started this but when members resorted to personal comments. One comment would be followed by another and so on. More members joined in the fray and the only way to calm matters was not to add another comment that could be misinterpreted by any party.
I kept out of these situations after learning quickly that this was the best response.
It is so easy when 'talking' in cyber space not to appreciate the intended meaning which would be obvious from facial expressions, tone of voice and body language, in person.
This is why I have not posted before but have watched with dismay as people have become angry/upset.
It would be a very boring world if we all held the same point of view. It would be nice if we could all repect another point of view without resorting to personal replies.
Let this site do what it does best in 2009: help, support, advise, make us laugh/smile, and even cry at times, but above all be there for those that need it and for some for whom it is a lifeline in the worst of times.
I hope that 2009 brings some good times for us all.
I haven't added my two penn'orth to this thread for the following reason.
As I have said before, I am a member of two other forums, such as this, not to do with PD, where some people know each other and some know no one at all.
Often on these forums there were flare ups due to a difference of opinion. It wasn't the difference of opinion itself that started this but when members resorted to personal comments. One comment would be followed by another and so on. More members joined in the fray and the only way to calm matters was not to add another comment that could be misinterpreted by any party.
I kept out of these situations after learning quickly that this was the best response.
It is so easy when 'talking' in cyber space not to appreciate the intended meaning which would be obvious from facial expressions, tone of voice and body language, in person.
This is why I have not posted before but have watched with dismay as people have become angry/upset.
It would be a very boring world if we all held the same point of view. It would be nice if we could all repect another point of view without resorting to personal replies.
Let this site do what it does best in 2009: help, support, advise, make us laugh/smile, and even cry at times, but above all be there for those that need it and for some for whom it is a lifeline in the worst of times.
I hope that 2009 brings some good times for us all.
Hi Poker.
Only just seen your post to me of 31st December on page 4. Not ignoring it, just catching up.
Unfortunately, some people are easily led both into situations and by information/lack of it, or by pressure from others. So, when you ask me, 'who?' I can only cite from my experience.
I have been in education, both of young people and adults, for many years. There are many people, more than you would imagine, of all ages, that are unable to read, and I mean unable to read a single word.........so any information that is accessible to most of us and from which we consequently make decisions, is not available to them.
There are also those who are unable to ask the right questions to gain information due to poor language skills.
I sometimes deal with young offenders, trying to improve their basic skills and therefore their chances of gaining work. Many of them have been led into their present lifestyle by following the example of friends and peers.
So, I do believe that people are easily led.
As for your second question, I shall assume that you didn't really mean to ask me that!
Only just seen your post to me of 31st December on page 4. Not ignoring it, just catching up.
Unfortunately, some people are easily led both into situations and by information/lack of it, or by pressure from others. So, when you ask me, 'who?' I can only cite from my experience.
I have been in education, both of young people and adults, for many years. There are many people, more than you would imagine, of all ages, that are unable to read, and I mean unable to read a single word.........so any information that is accessible to most of us and from which we consequently make decisions, is not available to them.
There are also those who are unable to ask the right questions to gain information due to poor language skills.
I sometimes deal with young offenders, trying to improve their basic skills and therefore their chances of gaining work. Many of them have been led into their present lifestyle by following the example of friends and peers.
So, I do believe that people are easily led.
As for your second question, I shall assume that you didn't really mean to ask me that!
Oops, question 3 Poker. Missed it.
Sadly OH is not interested and therefore it is up to me to find out all that I can. It seems that he has just sat back and let PD take over, despite all the input from physios, speech and occ. therapists that I have managed to put in place.
His recent deterioriation has me on another mission in the next few weeks.
benji
Sadly OH is not interested and therefore it is up to me to find out all that I can. It seems that he has just sat back and let PD take over, despite all the input from physios, speech and occ. therapists that I have managed to put in place.
His recent deterioriation has me on another mission in the next few weeks.
benji