Proposed Edinburgh Branch Research Interest Group
Research towards a cure is a principal aim of Parkinson's UK and surveys confirm that the overwhelming majority of members support this.
However despite this general support, relatively few members actively engage in research related activities – other than fund raising.
Also the amount of understanding by most members of the detail, scale and progress of research by the Society and worldwide seems fairly limited. Given the complexity of the subject (despite the excellent dissemination work of the Society and of SPRING) this is perhaps not surprising.
So a general aim might be to increase the number of members actively engaged in research activities of some sort and to raise awareness of research projects and outcomes.
To address this issue, the Edinburgh Branch is proposing the formation of a group of members with a common interest in Research with the following objectives:
1. To provide opportunities for members with an interest in Parkinson's research to meet, communicate, work together and generally further the cause of research.
2. To encourage and develop members’ interest in research.
Specifically this might include activities and projects relating to
• Identifying research opportunities
• Increasing awareness of research results, particularly those which might have immediate application such as quality of life issues.
• Encouraging an interest in research and links with Scottish researchers
We anticipate that membership would initially come from Edinburgh branch members and such SPRING members in Scotland as wished to join in. It is anticipated that membership would mainly come from Edinburgh and South East Scotland, but it would be open to any Society member interested in its work.
The detail of its activities and structure is for discussion. It seems likely that much of the communication would be via web or email, but some face to face meetings might be planned perhaps on a quarterly basis or from time to time during the year when suitable topics present themselves or are suggested by group members. Planning an annual research conference in Edinburgh for branch and other members also seems a likely aim.
An initial meeting of potential members is planned for 2 July, 2011 at the King’s Buildings campus of the University of Edinburgh.
If you would like to be involved please let us know by email. Please also let us have your ideas.
Ken Bowler, Edinburgh Branch Member email@example.com
Patrick Mark, Chairman, Edinburgh Branch of Parkinson's UK Patrick@edinburghparkinsons.org