Research study


#1
Post just arrived with an invitation to take part in a research study called 'Understanding the early pathological pathways in PD.
Has anyone else been asked to take part?

#2
My o/h took the sniff test but hasn't heard anything more. He is not a PwP but the research team were looking for those with and without PD

#3
This one is too. there will be 2000 participants with PD and 300 without including some family members.

It is not a drug trial they will just do a clinical exam, blood tests and cognition tests to be repeated every 18 months. (to try to understand cause and progression of the disease

#4
Had the first appointment today, took 1 hour.40minutes. Blood tests and clinical exaam. Cognition tests for example they said five words and I had to remember them 10 minutes later. Think about how many things beginning with a particular letter of the alphabet.Then tests for fine motor skills.Height and weight were recorded.

It was actually very interesting and my OH has been invited to participate as a Non PD participant.

#5
Nope.

Last time I did a study I had a line put into my arm at the elbow, which meant I couldn't bend it. I had a blood pressure cuff on the other arm.

I was then handed a roasting Klix plastic cup full of molten coffee and an unopenable packet of sandwiches for lunch while I lay in a hospital bed. While I lay there, deciding whether or not this was part of the test, I heard an almighty scream followed by a whole plethora of proverbials. A few moments later I realised the potty mouth was me.

Next thing I know I'm reciting Ode to a Mouse and the epic Tam O'Shanter, and consuming vast quantities of haggis, tatties and neeps. That's right I'm back in the Burns unit.

Quote for the day : "If it's a hit, hit it again."
or was it "If it's not broke, hit it again."?

#6
:cry::laughing: