I haven't been on this forum for a couple of years but I thought I'd check it out in its new format! My 'back story' is as follows:
I am 50 and was diagnosed in February 2007. I am on Sinemet Plus, Pramipexole, Azilect, Amantadine, and more recently....Topiramate, which really helps with the dyskinesias which I was having real problems with last time I was on here (if anyone remembers me! ).
About a year ago my GP referred me to a different neurologist at a different hospital because I was unhappy with the treatment I was getting from my previous hospital / neuro. I was much happier with this new neurologist and the hospital seemed much more efficient than the other one. We discussed DBS as the neuro said that I would be a suitable candidate for it, but I decided to put that on hold for the time being. It was him who suggested that my GP prescribe Topiramate, which has been invaluable to me in controlling my involuntary movements.
So for about a year my Parkinson's has been under control with the dyskinesias much improved. However, unfortunately, for the past 3 months or so I've been suffering from sciatica which has been getting steadily worse, to the point that for the last 2 weeks I haven't been able to stand for any length of time, and it's difficult to find a comfortable sitting position. I'm still managing to go to work, and I'm managing to walk around OK outside (for some reason I find that the pain eases off a bit when I walk outside, but it still hurts when I walk around the house!).
I'm beginning to struggle a bit with the housework because I live on my own with no family nearby to help me with anything. Even doing the washing up is a problem because I can't stand up for long enough to do it (not that there's much washing up, because I'm not in a fit state to cook anything so I'm pretty much living on toast and cereal!) And recently I had to pay someone to do my ironing! My 18 year old son who used to be able to help me with stuff like that has recently gone off to university.
I must say I'm finding the sciatica far more debilitating than the Parkinson's has ever been! My GP has recently referred me for an MRI scan so hopefully I should find out soon where the problem area is and be able to get some appropriate treatment.
So....that's my story so far!