Hi, I have not been here for a while, in fact my last post was in 2011! So hello to you all!
It has been a rocky road for the past few years. The medications decided to give up on me so last year I underwent the DBS operation at Addenbrookes. I must admit to being in awe of the surgeons, the neurologists, nurses. They have been gifted with the ability to understand the workings of the human brain, but they will admit that in this instance that although they no the op works they don't know how.
What they don't tell you is how long it takes for you to get working for you! The magic words of the 'switch on' is not all you expect it to be..... No magic I can assure you. It has taken since January for me to get anywhere near having little or no tremor. Even now all is not as it should be. What I can say is that I am not taking any Parkinson's drugs for over 3 weeks now and I am eternally grateful for that. Oh how w good it is to have a clear mind, no foggy head. Down sides are more pain, walking is more difficult and upping the Amps interferes with speech, hey ho, no pain, no gain they say.
I would love to hear others DBS stories!