Very newly diagnosed although have been seeing a neurologist for about 2 years - not a complete shock but still a hefty dose of reality.
Immediately given Ropinerole (2mg) which made me really ill with sickness, hot, cold etc… A week’s worth of Domperidome had resolved the side effects and now on week 2, due to increase to 4mg next week.
My overwhelming horror is that the tremor has exacerbated badly. Previously the tremor was mild, so I thought, and I could hide or at least control it. Now, it’s terrible and very obvious and I’m struggling to type and write which hadn’t previously been an issue. Next week I’m due to present to 250 people and whilst I never relish the opportunity I’m now terrifies as it’s going to be more noticeable.
I haven’t actually told anyone apart from my husband. I dread the thought of telling my parents - don’t want to upset them; and work colleagues - I’m good at my job and don’t need their pity.
Being diagnosed with Parkinson’s can be a real shock to the system even if you had suspicions of it for a while so it’s completely understandable if you need some time to process things. Based on the information you’ve shared, your tremors may have worsened due to the anti-sickness drugs that you’ve been taking.
However, you might still need to take Domperidome, so if you have any concerns about it, speak to your GP, specialist or Parkinson’s nurse. We have more information on the effects of anti-sickness drugs on tremors here - https://www.parkinsons.org.uk/information-and-support/tremor.
We also have a wealth of information on our ‘newly diagnosed’ section which covers speaking to family and co-workers about your diagnoses should you wish to share this information.
Lastly, if you’d like to have a chat to one of our friendly advisers for more information and support on this, please give us a call on 0808 800 0303 from Monday-Friday: 9am-7pm, Saturday: 10am-2pm, or you can email [email protected].
I hope you find this information helpful and I’m sure the other members of the community will soon flock to offer you some more support on this.
