Ropinirole augmentation

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1

Hi, has anyone gone through ropinirole augmentation, my RLS has become a living nightmare and wondered if asking my GP to switch to Gabapentin instead?

2

Hi Waynesmith,

Thank you so much for contributing to the forum and welcome back!

We’re sure some of our lovely members will share their experiences soon but in the meantime you may find the information on this page helpful: Dopamine agonists (pramipexole, ropinirole, rotigotine) | Parkinson's UK

If you do need any further information our helpline is always there. Please do give us a call on 0808 800 0303

All the best.

The Parkinson’s UK Moderation Team

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3

Hi waynesmith,

Honestly is this is affecting you so badly, why are you still on it?
Really rather go to a Neuro and get their opinion.
I really believe a GP is out of their depth in this type of situation.

4

It’s not something that you can just stop taking, needs to be weaned and an alternative sought. I am wondering if anyone takes Gabapentin for RLS.

5

Of course you cannot simply stop taking it, that would be disastrous.
That is why I suggested that you try to get an appointment with a Neurologist, to get their opinion.

6

Yeah, I will chase my Parkinson’s consultant for a review. Thanks

7

I’m on Ropinirole and after starting on a low dose and titrated to my current dose of 8mg with no notable side effects. Out of interest what dose are you on and how long have you been on it?

8

Hi, I am on 2mg, I started on 0.5 mg 4 years ago, I’m also on Levadopa 3 x daily

9

Wow you were started on a really low dose and stayed on a low dose, well a low dose according to some people I have spoken with.

I was started on 2mg and titrated up on a fortnightly basis, to my current 8mg level (it’s now been about 6months) after monitoring for any side effects by a Neurologist I saw privately, I wasn’t prepared to wait 10 months to see an NHS specialist. I am now under the NHS and he was ok with keeping me on the medication level, after questioning me for any side effects from the Ropinirole and asking if I was okay with the medication I was prescribed.

I have a very good friend with PD who was surprised by how early into my diagnosis I was prescribed Ropinirole, and how quickly it was titrated up, I have read some articles about it and it seems like it was just a case of who you saw , each Neurologist had their own ideas.

I hope you get your issues sorted.

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