Ropinirole

About Parkinson's and health Treatments and therapies
21

I WISH Sorry not on the Gin will wine do?

1 Like
22

Yes, but I think you have to drink more of it.

Steve2

23

Hi all im dont seem to be getting eny better im on Ropinirole 2mg i take 3 in morning then im on Sinemet 25/100 1 three times a day my stiffness isnt eny better or pain i seem to be slowing down .Can someone give me some advice i was diagnosed in december my concern is do i need more medication i will speak to my nurse but wondered what sort of doses you lovely people are on x

24

Hello Ann ā€¦ Do not assume the pain and stiffness you have is Parkinsonā€™s alone.
I too take Sinemet 3 times a day. I also take Amitriptyline which is a brilliant drug that stops all the pain I have. A lot of Parkinsonā€™s sufferers have neuropathy and Arthritis which I do, Amitriptyline is excellent for these sort of pains.

Best wishes
Steve2

1 Like
25

Hello Ann3, you say you were diagnosed in December, in Parkinsonā€™s terms that is no time at all. As you get more used to living with Parkinsonā€™s you will come to understand better what is normal for you, how you react to all sorts of things and you will develop a confidence to manage your symptoms in whatever way you need. That is generally not the case early on and if you are experiencing anything that causes you concern, I would always suggest you contact your Parkinsonā€™s Nurse or consultant for advice. I can understand why you asked about the doses others of us are on but it will, in my opinion, serve little purpose as we are all different even when presenting with very similar symptoms.
I often think getting oneā€™s meds right is a bit of a lottery. Some hit the jackpot at the first attempt. Many do not and have to go through some periods of trial and error before finding what works Maybe you do need to increase what you are taking but it could also be the case youā€™re on too higher a dose, Sometimes all it takes is a change of brand
If your Consultant and Parkinsonā€™s Nurse are worth their salt they will recognise and understand your concerns. Good Luck and plese do let us know how you are getting on

1 Like
26

Thanks Steve

27

Thanks Tot

28

hi there, iā€™m new to parkinsons, diagnosed Oct. 24 and new to the forum. iā€™d appreciate advice re medication . my consultant has put me on madopar and doubled my dose already to two 50/12.5mg three times a dy, he has recently put me on Baclofen too which according to Dr.Google contraindicates with levadopa , the main ingredient of madopar??? so iā€™m kinda confuesd why this ha s been prescribedā€¦

29

Welcome sarah22 please read Tots answer to what Ann asked I think you will find it helpful. There are lots of drugs for PD and once you have found one you notice your changes, but we are all different this is where your PD nurse comes in. So if you canā€™t get in touch with her then give Parkinson 'UK a ring, On the PD/UK web-site there is also w page with things to help with daily living and leaflets and books. One of the books that they have is all about Parkinsonā€™s medication and how it works what 2 drugs work with each other, and more. Well worth sending for.

30

Hi Mary have you ever missed eny doses of Ropinirole i thought i had another box but didnt couldnt get for 3 days so missed 3 doses i became unwell and even now i am back taking properly for the very first time i feel i truely have parkinsons my feet ankles legs hands fingers and neck i am inpain with, my mobility is aweful just bending to pick something up is aweful plus much more i know they say it takes awhile to get back like you were just missing a couple of days had the Sinimet but frightening how it gets so quick .Just wondering if yourself or enyone on this drug have experienced this xx

31

Hi,

Iā€™ve been taking ropinirole for a year now and recently needed to adjust the time of day for taking them so I was late taking them by 8 hours and my legs became very shaky and I found it a bit alarming but after taking the next dose of ropinirole everything calmed down again.

It just shows how bad my legs would be if I wasnā€™t on the medication.

Hope this is of some help to you,

Dawn

32

Hi Anna have been on Ropinirole since 2010 when i first found out that i had pd yes I have missed a dose, but gave a call to Parkinsonā€™s UK and the nurse addvised me not to take exter just take your next dose as normal, if at any time you are worried give Parkinsonā€™s UK a ring, the other things that you mention could be that master PD is trying to take over your body try and stay positive, donā€™t forget PD does not go from day to day but hour to hour.