Hi all im new on here have been dignosed in January .I am taking Sinemet plus 25/100 3 times a day but my nerologist added Ropinirole so i have taken my first one yesterday not really happy about the drug but if it helps great .Has eny one taken this and how did it effect you many thanks Ann
Good afternoon Ann3 … I am 71 & diagnosed in June 2023. I was taking 2 Sinemet 3 times a day. I have Restless legs. I also take 1 Ropinirole pill a day. No idea if it makes much difference but no adverse reaction to taking it.
Description. Ropinirole is used alone or with other medicines to treat Parkinson’s disease . Ropinirole tablets are also used to treat a condition called Restless Legs Syndrome (RLS). RLS is a neurologic disorder that affects sensation and movement in the legs and causes the legs to feel uncomfortable.
Best wishes
Steve2
1 Like
Hello Ann2
I have been on Ropinirole from the beginning of my medication regime which started immediately after my diagnosis over 15 years ago and have had absolutely no problems with it. Like all Parkinsons medication it suits some and not others and like all Parkinsons medication (or indeed any medication) it comes with a list of side effects which will affect some and not others, and the severity of its impact can be variable between individuals. Speaking for myself as I said, I have been happily using it for a long time and at my recent review my consultant and I agreed no changes were needed to the medication I am currently on including the Ropinirole.
Tot
2 Likes
Hello Ann,
I’ve been on ropinirole for a couple of months and all is fine now, I did feel a bit nauseous for the first 5-7 days and was given anti nausea medication.
I’m glad that I persevered because I am getting a better nights sleep, I take 3 x 0.25mg tablets 3 times a day.
Good luck,
Dawn59
1 Like
Hello Ann
Dawn reminded me. I too had a very short period, just a few days, of nausea when I started taking Ropinirole and I too was prescribed some anti nausea tablets which didn’t entirely stop the nausea but must have helped - I remember my consultant saying at the time if I didn’t take the anti sickness tablet I definitely wouldn’t be able to take the Ropinirole. I had forgotten about that, but it was only for the first few days.
Thanks for reminding me Dawn, we seem to have had a very similar experience lol. Hope you continue to do as well as I have on Ropinirole.
Tot
1 Like
Thank you all for speaking to me appreciate makes me feel a bit better Do you know how long it is till you feel normal again from taking these meds and how long till they kick in big question sorry Ann
My bad nausea only lasted for just over a week before it started to wear off and I began to feel the benefits of being on ropinirole after that, probably 3 weeks.
Two months on and I’m not as stiff and don’t get as much pain/restless legs.
I think most people on this forum would agree that if particular meds aren’t making a difference to you then it’s probably best to try alternatives. Do you have a Parkinson’s nurse Ann?
Yes not sure what i think about him .Like it that you have not as much stiffness and less pain . My neck and shoulders and hands are where my worst pain is have else where but not as bad .Reading your message shows it is worth persevering for a month or two thanks Dawn
1 Like
Hello me again
Just thought I would make comment on your not being sure about your Parkinson’s Nurse. First and most obvious is that it can take time for a relationship, any relationship to be comfortable, this is no different - except it is really for him to make you feel comfortable.
Second I thought it might help if I told you a bit about my own experience. My Parkinson’s nurse wasn’t in post when I was first diagnosed, she came on board a couple of years later. I liked her and we did and do get on but we come at Parkinson’s from different stand points. She’s very much uses the medical model ie statistics and evidence. I am much more social model ie it doesn’t matter to me if I have a placebo if it works, it works. Also my background is varied but a lot of time was spent working with all sorts of disability so I knew quite a lot about Parkinson’s and I knew what worked for me, keeping a diary which she was forever suggesting to me, doesn’t - it absolutely bores me to death, She was forever saying, you do have Parkinson’s you know - as if I could forget and which I found exasperating. In short she seemed to think I didn’t take my Parkinwon’s very seriously. On the contrary I do take it very seriously I just don’t want it to always be centre stage in my life. as I hsve said literally dozens of times on the forum i am Tot first snd I happen to have Parkinson’s. I will listen to what she says and her advice is sound but Parkinson’s is happening to me not her and I will live with it my way. So I just stayed true to myself esd honest about how things were etc and we have gradually come to accept the other’s approach for what it is. I may not be a stereotypical patient but she now accepts my approach works for me and I do take it seriously.
My way may not be your way but the Parkinson’s Nurse should be an important part of the process. Note the word part. You are part of the process too. It is a 2 way street so your voice, however you use it, is as important as his. It’s a point worth remembering. How or what you do with that is up to you.
Tot
PS It’s been a long time since she suggested I keep a diary lol
2 Likes
Afternoon Tot … I think it is a good idea to keep a health / Parkinson’s diary. I did keep one but I’m lazy & have stopped doing it. At the moment I am having some bad night’s sleep. How often do I have a bad night’s sleep. Yes, I should keep a diary.
At a guess I think I have 3 bad night’s sleep a week. Might be less, I don’t know. If I was asked by one of my medical team I would say I am sleeping badly.
An amusing task I have coming up is to keep a record of every drink I take for 3 consecutive days. So time drunk & measure how much I drink. Also I have to make a note of what time I pee & measure how much I pee. So if I have 3 pees a night that isn’t going to help me sleep well is it ? They have given me a measuring jug to use.
Best wishes
Steve2
I am not saying keeping a diary is not a good thing, steve2 only that it’s not for me - if it works for you great and good luck to you
You say you’re lazy about keeping a diary. I just find it boring. Our reasons may be different but diary keeping doesn’t seem to suit either of us lol
Tot
Hi Tot & Steve my nurse and PD doctor asked me to kept a dairy as i was getting to the state that i could not move, Well i kept one for 3 months (they thought that the reason I could not move was med wearing off) well i sent it too them and they sent answer back that it was inconclusive, 3 months ago I saw a new DR and he gave me px for Madopar Dispersible tablets. I can take these tablets an hour before my other tablets are due, i can only take up to 3 a day but they are Magic.
1 Like