Ruling out diagnoses 1 by 1

We had some results his MRI was clear the datscan showed a very mild decrease in dopamine levels. Probably not Parkinson’s the letter says.

So of course my head has gone into overdrive because we know they are slowing ruling things out. I think it may possibly be MSA which is a bit of a shock reading about, it, but his symptoms are certainly ranking up!.
In bed it feels like I’m sat on top of a washing machine on a spin cycle, his whole body vibrates, his stiffness is a lot worse legs and arms, he coughs when he is drinking. He was down for an appt in October but 4 months would be September so I’ve asked for one then.

Does anyone know anything about MSA please?
Thank you.

Hi Loulou25, thank you for your post and we’re sorry to hear about the difficulty you and your partner have been having. We’d recommend speaking to your GP who will be best to advise on MSA. There is also some information on the NHS website which you may find useful: Multiple system atrophy (MSA) - NHS

We hope you find the community on this forum helpful and please do let us know if we can help at all.

Parkinson’s UK Forum :blue_heart:

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There is a really good forum on Health Unlocked for MSA. I have my doubts about my husband’s diagnosis but I think it is a waiting game and it will become clearer. Take good care of yourself

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Thank you, you too. :smiling_face_with_three_hearts: