We had some results his MRI was clear the datscan showed a very mild decrease in dopamine levels. Probably not Parkinson’s the letter says.
So of course my head has gone into overdrive because we know they are slowing ruling things out. I think it may possibly be MSA which is a bit of a shock reading about, it, but his symptoms are certainly ranking up!.
In bed it feels like I’m sat on top of a washing machine on a spin cycle, his whole body vibrates, his stiffness is a lot worse legs and arms, he coughs when he is drinking. He was down for an appt in October but 4 months would be September so I’ve asked for one then.
Does anyone know anything about MSA please?
Thank you.
Hi Loulou25, thank you for your post and we’re sorry to hear about the difficulty you and your partner have been having. We’d recommend speaking to your GP who will be best to advise on MSA. There is also some information on the NHS website which you may find useful: Multiple system atrophy (MSA) - NHS
We hope you find the community on this forum helpful and please do let us know if we can help at all.
Parkinson’s UK Forum 
1 Like
There is a really good forum on Health Unlocked for MSA. I have my doubts about my husband’s diagnosis but I think it is a waiting game and it will become clearer. Take good care of yourself
1 Like
Tremors at night now are really bad, his speech is more and more slurred and he is forgetful and very fatigued.
Finally we got an urgent appt and we mentioned Parkinsonism he said he wasn’t going to bring it up , but it hasn’t been ruled out and they both use the same meds.
He is now on co-careldopa for 5 weeks, then we will be sent out an appt. We are even more confused now… but time will tell it seems. 
