You do not know for sure yet so you can not worry about something that has not happened. Your husband is probably trying to keep things normal. If it is pd, believe me it is not the end of the world. What you have to do for your own sanity is to meet pd head on and show it who is the boss and do not let it get the better of you. Change you way of thinking about pd and take charge of your future and your chattering four year olds future and do not hold back on the adoption, go for it!
minxish -- You are the perfect example of being alone in a crowd, aren't you? You have your immediate family plus your parents and your in-laws to deal with. Meanwhile, inside you are worried sick that you have a serious illness. It is too bad that no one takes your concerns seriously. I'd recommend trying to see a specialist in neurology or movement disorders. But I don't know where you are located, so the process may be different from what I am accustomed to in the U.S.
You mention feeling ill, depressed, and tired. You are "pretty certain" that you have PD. Do you have other symptoms as well? I wouldn't necessarily think of PD from just the symptoms you listed; there could be many other possibilities. But if you have a resting tremor or lack of normal arm swing when walking or other symptoms more specifically associated with PD, then I understand your conclusion.
As Terrific said above, if you do get a diagnosis of PD, do not think of it as the end to your normal life. I have had this disease 17 years now and am still leading my usual life! Medications are very effective now; exercise does a great deal for us; and a positive attitude helps even more. Although I am 68 and may not live long enough to see the cure, you at only 40 are quite likely to. (That is if you even have Parkinson's.)
I wish you good luck in dealing with all the fuss over the holiday weekend. I think if I were in your place, I would try to remain detached and calm, focussing on my own well-being rather than socialising. Maybe soon after that you can see a medical professional who can determine positively whether you have PD. Just not knowing is probably contributing to your anxiety and tendency toward depression.
Sincere best wishes,
You're welcome! That's what is so great about this forum: there is always someone to talk to, someone who knows what you are going through. And some members are very knowledgeable; I have learned a lot about PD medications from others on here.
Now I understand, from the symptoms you have had, why you believe it's Parkinson's. It sounds as if the neurologist is on the right track. When you have results to share with your family, you will probably get their attention and support in whatever you face.
Best regards, J
When I read your post it was like reading my own story so I fully understand your fears, the lack of understanding and support for you sounds almost non existant, I am sure that in their own little narrow minded world people think that PD is catching and if they get too close they will surely die, it really is annoying, the only person close to me now is my dear wife she is so good and I could not live without her but the pressure is causing problems.
After you have your scan you will know more than you do now, but J an d terrific are right in saying try to stay calm ,and as for not mixing anti depressant with parky drugs I am taking Mirtizapene which works well for me and I have advanced PD contolled by Duodopa system.
Do not despair there are good people who will help you I was diagnosed in 99 and I am 64 this year, still in there fighting and live a normal life yes its hard at times but its not the end.
Good luck with the scan Kindest Regards Fed
I hope you were not offended by my remarks by referring to folks being narrow minded by that I mean I was not implying your family behaved in that way, unfortunately mine does, I know they still love me but they never call in or ring me up just to ask how I am, I know its just as easy to call them and by behaving the way I am is not helping and I know that, but I am conducting a experiment here, its now 7 weeks since I have seen or heard from my eldest daughter, shes 42 , and almost 4 weeks since I had any visits or calls from my youngest, age 40, and she is training to be a nurse, perhaps she is using up all her compassion at work and there is none left for her dad,there are many other aspects of this sad tale which would make things clearer and easier to portray how things are going but I cant add more for I would then see in print some very unfair and disloyal behaviour by certain people not just my kids? ,I am sorry minxish I do get a bit upset when the conversation gets round to families and the behaviour of, but when I say that all my family who I need in my life now, all live within 4mls and one 2mls away , that is what makes me slightly annoyed.
Kindest Regards Fed
i understand how scared you must feel right now not knowing but sounds like your consultant is on the right track and once you find out if it is pd or not although it is a big shock to the system you will eventually learn to adapt and live with it there is life after pd diagnosis and though it wont feel like that right now try to have a posative attiude my motto is i have parkinsons it dosent have me, i am still me only slower, i joined my local support group best thing i ever did have made some lovely friends it is an upside of having pd if there is one, i suppose what i am trying to say is dont give up it wont be easy but you will get there keep your chin up.