Today it’s 6 years since I came to care for my mother with PD. I’ve learnt a lot about myself and even more about how to help mother … but for a 24/7 carer who’s there for ME?
I’ve been screaming for ages … don’t mention family or friends - they ‘get busy’ soon as they think we might need them!
Anyone got any good ideas? I’m so lonely I feel like I’m the only one on the planet right now.
Mum has had PD for over 30 years now. Dad was main carer until he died in 2017 and I took over from 2012, overlapping and caring for them both for a time. Gradually I found God, became very patient and learnt many things about myself … took up hobbies I’d long ‘let go’ … but as a retired person I figured I owed myself that much at least.
Not so. I’m housebound too. We have everything delivered. I don’t like moaning and groaning but is anyone as lonely? What do you do?
I feel like talking to others is an impudence because why should I inflict them with my problems … but sometimes I can feel my head really hurting with my screaming … but it’s soundless …