Selegiline thoughts


#1

Hi there, this is my first day at the forum having recently been diagnosed with PD.
I was diagnosed in June and saw the nurse yesterday and they recommended that I start on Selegiline. From what they said there were no down-sides to the medication and it might be very helpful but reading a little more I see that some people have some side effects and food restrictions so I’m curious to get a better picture of the possible benefits and possible drawbacks please.


#3

Hi Mistermike,

Sorry to hear about your recent diagnosis. You must have lots of queries and concerns at this time, so we’d suggest you take a look at our website where you can find plenty of information, support and advice: https://www.parkinsons.org.uk/information-and-support/newly-diagnosed-parkinsons

You might also like to give our Helpline a call if you’d prefer to speak to somebody in person. You can reach them on 0808 800 0303.

In the meantime, we have some information about MAO-B inhibitors like Selegiline on our website, which you can read about here: https://www.parkinsons.org.uk/information-and-support/mao-b-inhibitors

I hope this helps.

Take care,

Owen,
Moderation team


#4

Hi Mistermike,
I have been on selegeline for 6 years the only side effects were initially I felt sick but I took domperidone and this helped.I was not on domperidone for long.
Hope this helps.
Anne29


#5

Many thanks for the quick response, that’s reassuring to hear.


#6

Many thanks for the quick response and I’ll certainly read the links you sent. Best regards


#7

I am also on selegaline it’s a must for me in the mornings when I have too get ready ifor work


#8

im newly diagnosed and Ive been recommended to use Selegline also ,im not seeing my consultant for a few weeks as she has been on Holiday but am trying to cope without which i thought i could at first ,as i have had tremors for over a year it has very slowly got worse ,its just the aches and pains in wrist,bicep area from the constant tremoring that gets me down so i think im going to go with it.

my grammar is appalling apologies


#9

Hi @simon2003,

Apologies for my delayed response.

I’m really sad to hear that your tremors have gotten worse. As your consultant is away, you should definitely contact our helpline team and have a chat with one of advisers about this. They can arrange for a Parkinson’s nurse to call you back within 24 hours who can provide you more support.

You can call them on 0808 800 0303 from Monday-Friday: 9am-7pm, Saturday: 10am-2pm, or you can email hello@parkinsons.org.uk.

Hope this helps.

Best wishes,
Reah


#10

My apologies for the delay in replying we’ve been away. Thank you for the positive feedback, very much appreciated.