hi vicki, excuse me if I'm asking a stupid question as i don't use private messaging!
Surely you must know the usernames who sent these nasty messages? Cant you report them to the moderator? I feel sad to think people would stoop so low as to send you nasty and vicious messages, whilst concealing their real identity behind a username. I have only one word to describe these people....Cowards!
regards
bluey
Don't u ever slow down? LOL.
I myself went thru the media sensationalism of my case (I suffered OCDs for 7 years while the pillocks kept on giving me the wrong drugs), and being ridiculed by every idiot this side of Christendom.
The reporters pretend to care, but all they really want is to splash the juicy bits all over their front pages, like when I was a bit of a tranny for a while (frilly knickers, always good 4 a laff), spending fortunes in Vegas and local casinos, visiting massage parlours, cruising on the QE2, defrauding people to get the cash I needed and renting Ferraris, Porsches and Bentleys.
Sod 'em, what do they know?
I just wish I had your energy Vicki!
Enjoy yourself.
I myself went thru the media sensationalism of my case (I suffered OCDs for 7 years while the pillocks kept on giving me the wrong drugs), and being ridiculed by every idiot this side of Christendom.
The reporters pretend to care, but all they really want is to splash the juicy bits all over their front pages, like when I was a bit of a tranny for a while (frilly knickers, always good 4 a laff), spending fortunes in Vegas and local casinos, visiting massage parlours, cruising on the QE2, defrauding people to get the cash I needed and renting Ferraris, Porsches and Bentleys.
Sod 'em, what do they know?
I just wish I had your energy Vicki!
Enjoy yourself.
Hallelujah !!!!! This programme resonated with me 100%. It was so honest, true and all the more real for me. Thankyou Vicki, you are a very brave lady and I applaud you. I personally,would prefer Jimmy Choos'!!?? xxx
Well I've got to say I'm disappointed.
I reckoned the phone calls, emails, texts would be non-stop once everyone thought I'd be up for it, because I had Parkinson's.
I even got in some extra viagra (myolcoxaphlopin) to keep up with demand.
Not a sniff.
I reckoned the phone calls, emails, texts would be non-stop once everyone thought I'd be up for it, because I had Parkinson's.
I even got in some extra viagra (myolcoxaphlopin) to keep up with demand.
Not a sniff.
Thanks for your contribution, Eck.
Hi Vicki.
I watched on Friday and I think you were very brave and honest. You have a lovely family. You seem very aware of how the drugs are affecting you which is a good thing - my husband was in denial about his behaviour. As someone else has said, if we had done a documentary about our experiences it would have had to be on after the water-shed!
I'm sorry to hear that you are receiving nasty messages. For some reason the subject of OCD's seems to bring out a lot of bad feeling in some people - and always among those who have not had any experience of it. Heaven knows it is bad enough going through all the grief without people making you feel worse about it.
Thank you for bringing this very sensitive subject to people's attention.
Best wishes x
I watched on Friday and I think you were very brave and honest. You have a lovely family. You seem very aware of how the drugs are affecting you which is a good thing - my husband was in denial about his behaviour. As someone else has said, if we had done a documentary about our experiences it would have had to be on after the water-shed!
I'm sorry to hear that you are receiving nasty messages. For some reason the subject of OCD's seems to bring out a lot of bad feeling in some people - and always among those who have not had any experience of it. Heaven knows it is bad enough going through all the grief without people making you feel worse about it.
Thank you for bringing this very sensitive subject to people's attention.
Best wishes x
Any time.
That's me "anytime eck".
(Actually they wont let me have DA's anymore but don't tell anyone else that. I say extra myolcoxaphlopin. I currently take one at night to stop me falling out of bed. (see posts regarding my coccyx))
Glad your back ray.
That's me "anytime eck".
(Actually they wont let me have DA's anymore but don't tell anyone else that. I say extra myolcoxaphlopin. I currently take one at night to stop me falling out of bed. (see posts regarding my coccyx))
Glad your back ray.
Not sure how I feel about the way the creator of the documentary portrayed parkinsons...Vicki I think you came across really well and told your story but I wasn't very impressed with some of the 'dark' clips they put in with the scary music and the elderly asian woman who obviously had quite advanced parkinsons and severe dyskinesia. To someone who is newly diagnosed looking for further information on the condition, this would be terrifying!
These parts were obviously used (I think) to captivate the audience and give the 'Requiem for a dream' type style another user has talked about.
These parts were obviously used (I think) to captivate the audience and give the 'Requiem for a dream' type style another user has talked about.
For me the message that came out from this program was how powerful and mind altering the drugs can be, with side effects sometimes worse than the illness. I started on Ropinirole and for two years everything was fine, no side effects at all. Then I became constantly short of breath, tight-chested and hardly able to walk. I collapsed one day at work. Angina was diagnosed and I was sent for an angiogram, which proved that my arteries were clear. About the same time I was exhibiting symptoms which led my neuro to suspect Multiple System Atrophy rather than "just" Parkinson's and I spent a week in a London Hospital having extensive tests, which concluded it was unlikely I had MSA.
Eventually it was me that suspected the Ropinirole and I had to almost beg my neuro for an alternative. Eventually put me on Sinemet and hey presto, all my symptoms (apart from the Parky ones of course) disappeared!
Personally I don't feel that enough warning is given about the potential side effects of these drugs, both in scale and scope. I wasn't warned about the high incidence of depression with Parkinson's, either. It hit me like a wall and I almost took my own life. With all these issues going on at about the same time, whilst still trying to hold down a demanding job, it's no wonder I couldn't cope.
Oh, I've had the OCD too, In my case spending far too much time on the Internet and indulging, I'm sorry to say, in some of the more sordid sites, which is quite paradoxical as one of the effects of the drugs/illness/whatever has been an almost complete loss of libido even with prescribed Viagra. On balance I think I might have preferred the hyper-sexuality!
My story could hardly be more different to Vicki's, but that's the point, there are as many different stories as there are pwp. This program was Vicki's story, not mine or anyone elses, so nobdy is really in a position to critisize. I know some are worried about the "damage" that may have been done to the image of Parkinson's sufferers amongst the general public but, let's face it, 99% of them will have forgotten it by now.
The people it may have reached, and this is the important bit, is people who right now realize that something is not quite right with themselves, people who are about to start their own long journey of Parkinson's discovery. Having some insight into the potential consequences of this dreadful illness and it's powerful and unpredictable treatments might at least prepare them and make them more likely to spot the symptoms if and when their own behaviour starts to become significantly different from the norm.
I have both great admiration and great sympathy for Vicki. It was bad enough for me to develop Parkinson's in my early 50's but for it to have happened in my late 30's would have been unthinkable. And that's another clue as to why Vicki's story is so different to many others, early onset provides a whole new dimension to Parkinson's. I know we would always like more but I think the program covered these issues as well as we could have reasonably hoped.
Well done Vicki!
Eventually it was me that suspected the Ropinirole and I had to almost beg my neuro for an alternative. Eventually put me on Sinemet and hey presto, all my symptoms (apart from the Parky ones of course) disappeared!
Personally I don't feel that enough warning is given about the potential side effects of these drugs, both in scale and scope. I wasn't warned about the high incidence of depression with Parkinson's, either. It hit me like a wall and I almost took my own life. With all these issues going on at about the same time, whilst still trying to hold down a demanding job, it's no wonder I couldn't cope.
Oh, I've had the OCD too, In my case spending far too much time on the Internet and indulging, I'm sorry to say, in some of the more sordid sites, which is quite paradoxical as one of the effects of the drugs/illness/whatever has been an almost complete loss of libido even with prescribed Viagra. On balance I think I might have preferred the hyper-sexuality!
My story could hardly be more different to Vicki's, but that's the point, there are as many different stories as there are pwp. This program was Vicki's story, not mine or anyone elses, so nobdy is really in a position to critisize. I know some are worried about the "damage" that may have been done to the image of Parkinson's sufferers amongst the general public but, let's face it, 99% of them will have forgotten it by now.
The people it may have reached, and this is the important bit, is people who right now realize that something is not quite right with themselves, people who are about to start their own long journey of Parkinson's discovery. Having some insight into the potential consequences of this dreadful illness and it's powerful and unpredictable treatments might at least prepare them and make them more likely to spot the symptoms if and when their own behaviour starts to become significantly different from the norm.
I have both great admiration and great sympathy for Vicki. It was bad enough for me to develop Parkinson's in my early 50's but for it to have happened in my late 30's would have been unthinkable. And that's another clue as to why Vicki's story is so different to many others, early onset provides a whole new dimension to Parkinson's. I know we would always like more but I think the program covered these issues as well as we could have reasonably hoped.
Well done Vicki!
All I can say is thank you Vicki from a 45 yr old with young onset parkinsons
you are a godsend
thanks again!
you are a godsend
thanks again!
Thanks Shirley and thanks to all comments good and bad x
Even if u didn't like it it's done what I wanted- made people more pd aware; espec those in my life.
The amount of young parkies with similar stories and young adults who have a parent with pd who have contacted me has been amazing . I kno I've done the right thing!
Still are a few who don't want to hear what i say, have to accept that , all I kno is it's brought me to a crossroads in my life.
Onwards and upwards x
Even if u didn't like it it's done what I wanted- made people more pd aware; espec those in my life.
The amount of young parkies with similar stories and young adults who have a parent with pd who have contacted me has been amazing . I kno I've done the right thing!
Still are a few who don't want to hear what i say, have to accept that , all I kno is it's brought me to a crossroads in my life.
Onwards and upwards x
Vicki
I don't care what anyone else says..... all those people affected by the behavioural side-effects of Parkinson's medication owe you a huge debt of thanks. Anyone who says anything negative about you and the issues you have tackled in the programme clearly does not know much about the individual nature of Parkinson's and even less about the sort of person you are.
Tom
I don't care what anyone else says..... all those people affected by the behavioural side-effects of Parkinson's medication owe you a huge debt of thanks. Anyone who says anything negative about you and the issues you have tackled in the programme clearly does not know much about the individual nature of Parkinson's and even less about the sort of person you are.
Tom
Thank u so much xxxx
Vicki hello
It is good to see you on line again. How are things with you and your lovely family?
Radz x
It is good to see you on line again. How are things with you and your lovely family?
Radz x
Dear all
Hope to meet many of u this weekend
Lots Id like to meet
So life following the doc.....hmmmm..... Let's just say not been easy and am now in the throes of a grievance battle with work - but I would do it all again
In fact there are 30 hrs of footage unseen if anyone's interested lol
Hope to meet many of u this weekend
Lots Id like to meet
So life following the doc.....hmmmm..... Let's just say not been easy and am now in the throes of a grievance battle with work - but I would do it all again
In fact there are 30 hrs of footage unseen if anyone's interested lol
Hi Vicki,
Looking forward to meeting you this weekend, bet there were bits in that 30hr footage that you would like to have been shown? Sorry to hear your'e having troubles at work :(
Speak soon
Diane
Looking forward to meeting you this weekend, bet there were bits in that 30hr footage that you would like to have been shown? Sorry to hear your'e having troubles at work :(
Speak soon
Diane
hiya vicki see u at the weekend ,carnt wait x
Ha ha ! Looking forward to it / feeling feisty frolicky and ..... Well entertaining !
Interesting , respect for each other ? Ha! Just read comments re myself on another pd forum
[This post has been edited/removed by moderators because it does not comply with our forum guidelines. You can find the guidelines here: http://www.parkinsons.org.uk/forum-terms-and-conditions/forum-help/forum-user-guidelines.aspx ]
My children I d like to make very clear have had no " repercussions" regarding their mothers documentary. And thankfully my family and friends know me sufficiently well enough to know I am who I am, not just a party p... Head.
And people do need a bit shock tactics / the public think pd is just "having a bit of a shake" that people in their older yrs get, not folks with a young family, career etc
We live in a relatively small community where it's widely known I have pd, and thankfully I've been well supported in all my numerous fundraisers . Their friends and parents supportive of us all , realising the media have twisted alot to sensationalise .
But I still stand by wot I've done, but accept I've been used too and naive and too trusting in my efforts in trying to do some good, although crass at times, i have brought yopd out into the wider community a dam sight more than others have, it made people talk, it made people aware. If you don't believe me maybe you'd like the letters, emails, texts, Facebook messages I received as evidence. Like it or hate it , I do actually
care but positive feedbk by far outshone negativity. There was a comment how because I work full time and actually dare to not be a hermit I'm painting the wrong message! Jaysus, so sorry for having a life when I can,
And as for my non acceptance / ur right, I'm bloody pissed off I got this at 35 - unless u were that age or younger u have no idea!
I feel I've been robbed and you can dress it up in any way u like... I will never accept it, and will go on awareness raising, fund raising , ranting til I'm deed or cured!!
Ahhh.... Feels better
Pmt I think
Btw Please take a look at my blog, u may even like and realise I'm actually not a heathen hussy from Babylon
http://www.wobblywilliams.com/vicki.html
[This post has been edited/removed by moderators because it does not comply with our forum guidelines. You can find the guidelines here: http://www.parkinsons.org.uk/forum-terms-and-conditions/forum-help/forum-user-guidelines.aspx ]
My children I d like to make very clear have had no " repercussions" regarding their mothers documentary. And thankfully my family and friends know me sufficiently well enough to know I am who I am, not just a party p... Head.
And people do need a bit shock tactics / the public think pd is just "having a bit of a shake" that people in their older yrs get, not folks with a young family, career etc
We live in a relatively small community where it's widely known I have pd, and thankfully I've been well supported in all my numerous fundraisers . Their friends and parents supportive of us all , realising the media have twisted alot to sensationalise .
But I still stand by wot I've done, but accept I've been used too and naive and too trusting in my efforts in trying to do some good, although crass at times, i have brought yopd out into the wider community a dam sight more than others have, it made people talk, it made people aware. If you don't believe me maybe you'd like the letters, emails, texts, Facebook messages I received as evidence. Like it or hate it , I do actually
care but positive feedbk by far outshone negativity. There was a comment how because I work full time and actually dare to not be a hermit I'm painting the wrong message! Jaysus, so sorry for having a life when I can,And as for my non acceptance / ur right, I'm bloody pissed off I got this at 35 - unless u were that age or younger u have no idea!
I feel I've been robbed and you can dress it up in any way u like... I will never accept it, and will go on awareness raising, fund raising , ranting til I'm deed or cured!!Ahhh.... Feels better
Pmt I think
Btw Please take a look at my blog, u may even like and realise I'm actually not a heathen hussy from Babylon
http://www.wobblywilliams.com/vicki.html