I have had an eventful day today to say the least. I had my follow up appointment with the neurologist I am seeing privately through Benenden Health. As a trial I had stopped all my Parkinson’s medication. He examined me today and I think we both thought that my symptoms are worse now than they were when I first stopped taking the Parkinson’s medication and my sleep issues are unchanged, so no plusses & a few minuses.
So I am back on my Co-careldopa and Rasagiline. He has told me that I can vary the dose I take, instead of taking 2 pills 3 times a day I can increase my dose if I am playing Indoor bowls to 3 pills first thing, 2 pills mid day and miss the evening dose.
If I am not doing anything I can just take 1 pill 3 times a day. I am to keep a record of how I feel each day. There seems to be nothing that can be done for me, other than altering my medication.
I also had my CT scan results … on first viewing not too good. My Kidneys are fine but there are issues with my Liver and I need another Mri scan done on my Spleen. Also
there were “Changes in my right rib” which might be a return of my Prostate Cancer, or might not. So I am to have a PSA blood test.
Hi @Steve2, thank you for sharing your experience today with us on the forum. It sounds as though your neurologist is giving you the care and attention you need to support you through your journey with Parkinson’s.
If you ever need someone else to speak to, our free, confidential helpline is available to anyone affected by Parkinson’s. Our trained advisers can offer support and advice, and you can ask to speak to one of our Parkinson’s nurses if you need support: 0808 800 0303.
We wish you all the best with your ongoing treatment and upcoming PSA blood test.
Sorry to read your results have been a bit negative today steve. Its good to have all the information though, then atbleast you know what your up against. Hopefully being back on the PÐ meds will at least make the wear offs etc more manageable. You have not had an easy time of it, and i was wondering how you were getting on. Getting back to bowling will at least give you a break from some of the day to day worries for a wee while.
Best wishes j and c
Thanks jandc … Oh and I forgot this neurologist has referred me for another
Mri Brain Scan as he wonders if I have had a minor stroke which caused my left leg numbness.
You couldn’t make it all up could you.
All this paid for by my membership of Benenden Healthcare, costing me £15.85p a month.
Hi Steve,
Looks like you are having a bad time I emphasize with you.
I have seen some interesting information on YouTube with Dr John Campbell discussing cancer treatments with Dr Makis
( oncologist) who uses ivermectin and fenbendazol to treat cancers
With great success.
He has many case studies on X where you can see the results blood work and imaging information from patients.
I believe that ivermectin is also used in the COVID spike detox protocol. Which may also help those who have a spike problem.
I also seen that Professor Dalglish from guys hospital has used ivermectin on a few patients with cancers that weren’t responding to conventional treatment. The patients responded to ivermectin and improved.
As always keep an open mind and research your self.
Hello Lar … I do have A Fib attacks for which I take Bisoprolol a Beta Blocker & Apixaban a Blood thinner, I also take a pill for High Blood pressure. Mini strokes are suspected as I felt very light headed for a day & my left leg went numb below the knee. My only brother & my only Uncle both died from strokes.
Hi Steve good your on blood thinners I was concerned about that.
I also came across a video about AFib and it explains how A fib can cause clots due to to blood pooling in the heart and the bit of blood left starts to clot if it reminds in the heart too long , it is my interruption my no be exactly correct.
If you can get the AFib sorted that would be a good thing for you.
Best of luck with the MRI I believe in Nero plasticity the brain can use new pathways with training.
Best wishes and don’t give up.
There are more than one way forward.