This is my first time doing this, joining an online forum and expressing feeling and stories.
My mum has PD, and has had it for 7 years now. She takes Madopar 12.5/50 capsules x2 4 times a day ( what has been changed on the 10/10/18, as she use to take x2 x3 times a day ) and also takes Half Sinemet CR 25mg/100mg x1 twice a day. She was taking sinemet and Madopar together at 10.00am and 22.00pm. We have changed the time for her Sinemet to 08.00am and 20.00 so the medicine can desolve and will be ready for Madopar.
My mum has been in and out of hospital for the past two weeks as she has been getting really bad voluntary movements from Madopar (which is a side effect - dyskinesia). We are waiting to be seen by her neurology doctor, hopefully tomorrow (22/10/18). I’m hoping he will take her off the Madopar and try something else like dopamine patches?
As my mum is in a bad state, her legs have really bad bruises as her legs been hitting each other and she hardly sleeps. My brother has been thinking about DBS, deep brain stimulation. Wondering if anyone has experienced what my mum has, What options did you have?
Any information would help please.