I’d be really grateful for a few words of wisdom please.
I’ve been living with Parkinson’s Disease years for well over a dozen years now. I’m 60 and have just moved from full time to part time working (my employer has been fantastic with a whole range of work related adjustments). I’m still positive - on most days anyway.
Over the years I’ve moved through a whole range of different medication and landed on Sinemet Plus about three years ago. I’m on 3 x 25/100 and 1 x rasagaline each day.
It’s been working really well for me until recently. All of a sudden I started to really struggle and after chatting with my fantastic Parkinson’s nurse, the dose was switched up to 4 x 25/100 daily.
Forever the optimist I thought that would fix things - but I’m still struggling at the end of each dose and my off periods are more pronounced.
I know it’s just the condition deteriorating- but it’s the step up in speed and lack of response to the daily extra tablet that has surprised me.
Has anybody else experienced anything like this? If so, how did you cope with it? Did things get any better?
Grateful for any advice to help me make sense of what to do next. I will chat to my nurse again but wanted some informed views to help me first.