When switching from Madopar to Sinemet I found slight improvement in upper arm pain.......although it is still bad if I try to lift anything, or use my arms above head height. I still shake in my left leg and do a good impression of John Cleese doing his funny walk......I plod like Co Co the clown. I have musculoskeletal problems caused by work so it may differ very much for others.
My Sinemet is backed up by co-beneldopa slow release at night which I found useful. I don't wake feeling like a space cadet in the middle of the night now.
I don't exactly freeze, but I do go into a pause sometimes.....slightly lapsadazical and mesmerised is the best I can describe it as, usually at supermarket checkouts for some strange reason. It's like being ultra relaxed.
No real problems with illusions like Madopar, just the odd peripheral flicker, as if a bird fluttered by out of the corner of my eye.
Memory is poor. Left arm shakes when tired, I have no grip or motor skills in it anymore, same with left leg. PD nurse is advising a helper (not sure of name) when I feel it is necessary. Apparently there are still plenty of options.
All things considered I'd rather have Sinemet than Madopar.
Hi Gus, haven't been around for a while due to moving house. Last time we spoke I think was concerning PIP. I have had it granted at long last.
I would advise anyone to seek help from age concern who is struggling with this. My PD nurse and my consultant also helped me.
The reason for the house move was to be on one level in preparation for my decline. It has been pretty rapid this year. PIP will be a God send with my wife retiring next month. I am already starting to use specialised tools for putting shoes on and eating. At least I have no stairs to fall down now and an improved access. Room for a mobility scooter when the day arrives. So much to look forward too!!!!!!
Plan A is to get as much done as humanly possible while I still can. The Parkinsons will have to take second place where possible.