I did post this earlier so apologies if this is my second post. I was diagnosed in January 2019 and I am 47. Was told by a neurologist after a 20 minute consultation and was the least expected diagnosis as I thought it was either a shoulder injury or essential tremor. I have a wife and a youngish family (11&13). I am currently on ropininerol 12mg and co-beneldopa 25mg each day. My symptoms are stiffness in left hand and trenour in left hand. Fairly mild if I’m honest compared to videos and information I have looked at.
Any advice for the following three issues would be greatly appreciated;
Sleep - Two weeks after my diagnosis I started having very poor sleep. I get and average of 2-3 hours per night and it is interrupted sleep not straight through. I wake up anytime after midnight and although I have tried many methods can’t get back to sleep. I am a teacher and although it is affecting my job which I love it has had an impact over the past 7 months. One of these is driving. I have about a 45-50 minute drive to work each day and both going and returning I feel very very sleepy. So much so that I often pull over and have a sleep for 10-60 minutes. I have had counselling which hasn’t worked. Been umpteen times to my GP who doesn’t seem to know what to do. Since being on holiday it has improved slightly as I am able to sleep in the day. Anyone else experienced this or something similar please let me know how I can I can beat this.
Swallowing - when I am in bed I often get a build up of mucus as I seem to have a permanent cough ( I have seen my gp several times had scans that have come back clean) they say it’s viral and will eventually go away. Anyway the problem is I often wake up choking on this build up. So much so that I sometimes vomit but most of the time just have trouble swallowing or stopping the urge to swallow.
music - I play in two bands as a lead guitarist and play regularly. I have noticed a slowdown and a lack of ability to stretch recently as if I am wearing a thick glove. Is there anything else I should be doing for this. I’m guessing it’s inevitable that I will eventually have to stop my beloved playing which in all this is one of the things that most scares me.
Can increases in doses of my medication help with this in anyone’s experience?
Sorry for the long post but any help at all would be hugely appreciated.