Fed, I share your marveling at the feats of electronics. I never cease to be amazed at modern communication, though my grandchildren aren't awed a bit. Their thumbs fly so fast on iPhones and iPads and so forth that I can hardly focus on them. Since they've had this technology around since they were born, it's all taken for granted as an ordinary part of life. To us, it's new and (for me, at least) mysterious.
I don't know what to say to the jealousy matter. When my husband was living, I was certainly possessive of him and could easily have slipped into fierce jealousy if he had given me any cause. But he was a man who devoted his personal life to me and our marriage, and I was never inclined to look at another man. So I have to say I have little experience with jealousy in spite of my many years on this planet. I think it is rather like anger or resentment, though, in that it eats away at the one feeling it instead of achieving anything in regard to the one causing it. If that is so, you are right to "reign it in" and keep moving forward, not back to those teenage years. Our emotions really were exaggerated in those days, weren't they? I can recall (with some embarrassment) my over-reactions and depth of feeling where it was not merited. Never would I want to return to that stage of immaturity and vulnerability.
Well, I hope the coming weeks and all of the New Year bring you peace, satisfaction, and joy! J
Thank you to everyone that has answered my plights I do appreciate reading other peoples comments.When we went to see the Neoro last time he told my husband he was at the stage where the meds were not working so well, but he is on the best drug he could have for Parkinson's with Sinemet plus. We did try, as he requested to take Sinemet CR in place of Sinemet plus but that seemed to make him worse, so we are now back to where we started although we have halved the dose as he takes it more often (a game of trial and error)I don't know if it is because he also has Mild Cognitive Impairment that a different drug is not suitable .But the Nouro is the specialist and we can only go by the things he tells us. He seems very good and did lots of tests and took time with him so I am not complaining.about him
I just now though feel I am giving up and accept the fact he is on the best drug he can have. I must admit I feel worn out with all that goes with this horrible illness. He has got so grumpy and doesn't want me to do anything to help him regarding meds . He has been offered Hydro Therapy but will not go it is a real effort to get him to leave the house all he wants to do is sit in the chair watch TV and sleep Oh Joy
I'm sorry to hear that your trials continue and your husband hasn't improved his quality of life. With your own case of PD, you're bearing a double load of trouble and worry. But your husband is doing the worst thing possible for a PD patient: sitting still. Your neurologist should know that and be suggesting ways to get more activity into his life. I cannot give advice on medications, but I know there are many more that could be tried if you have a doctor willing to take alternate courses of treatment to counteract depression as well as PD.
You have my deepest sympathy. Although I hate to see anyone succumb to Parkinson's without testing every available means of help, I understand how tiring the daily fight can be and how hard it is to motivate someone else to join the fight. I wish you well in every regard.
Hi everyone I wonder if anyone has panic attacks I think I have had one today it started out of the blue with pins and needles in my hand I thought I was having a stroke I was really scared I thought I was going to die.How do people cope with this,
My husband is on Sinamet plus and Sinamet CR and has some mental impairment so perhaps our experience will be useful to you. Our GP referred us to the mental health team for an assessment and advice. He was prescribed Aricept, folic acid and injections of vitamin B6. He soon became himself again and the Aricept was gradually increased as he became used to it. Eventually side effects meant the prescription was changed to Reminyl. There seem to be several drugs to choose from. We live in Surrey where the mental health team visit at least twice a year and are always contactable by phone so advice is readily available and we feel supported by them.
Sadly my husband is now unable to walk and quite confused, not keen on going out but enjoys short visits from friends. He sleeps such a lot but I have to make allowance for the fact that he is 82.
I hope you can soon get the help you need and that your own experience of PD will be less extreme.
Although I have no personal experience with panic attacks, I have read a few posts mentioning them, so you will probably get responses from others on this forum. In the meantime, if you enter "panic attacks" as a search, the forum gives a lot of valuable information.
Many thanks for all of your replies. I am afraid we are still at the same stage with my husband. Saw the PD nurse recently who advised him to try Sinemet plus again as he was only taking Sinemat CR.
He is always worse after taking that drug' he has now gone back to CR again which makes no difference regarding his general PD but helps a little with the stiffness.
Saw the GP 2 weeks ago he was recommending what he said was an emergency neuro appointment for him, but have not heard anything as yet.
I haven't gone down the private route as I was told that his neuro sees all the private patients anyway.
I am so frustrated about all of this I cannot seem to get anywhere and his condition worsens rapidly.
I did ring the help line who put me in touch with a PD nurse. She was very nice but only could advise me to see my GP which as I said I have done. Waiting and live in hopes
Hi. Everyone, not posted for some time, husband not doing so well now, today he choked on his meal, we both thought he was going to die, he could not breath for what seemed an age, thank goodness my family are next door to us, other wise I am sure he would not be here. Everyone take notes of what to do for choking, it could save someone's life, as it did his.
