Hi My husband and I both have Parkinson's, we are both very different with our symptoms, I have been diagnosed the longest, but at the moment it is my husband that I am most worried about. he was diagnosed 4 years ago.Recently he was also diagnosed with Mild Cognitive Impairment. He is at the moment on 6 Sinermet plus a day. Sinamet CR at night, and 100 mg of Lustral anti depressant. He also takes Ramprinirol for blood pressure.which is now mostly normal, and takes Movicol a Laxative
We have noticed within the last year from being an energetic man, he has deteriated badly, at the moment he has no energy and is constantly tied, he describes himself as feeling weak and often has dizzy spells.which happen for most of the day. His quality of life is zero as he now does not want to go out at all.and cannot sum up the energy to do anything,although he does try he just finds he can't. At night he needs to go to the loo often then the problem is getting back into bed as he struggles to pull his legs in and then arrange the duvet. He is often uncomfortable because he cannot then move. Quite often I find him in the chair as he cannot make the effort. he will not disturb me as my sleep pattern is not good either
He saw our PD nurse .who has been very good in trying to help, she has moved his medication around as a trial but at the moment I feel things are going from bad to worse.
Is there anyone else out there with the same sort of problems, or is this the norm for some people to be so weak and frail, I don't know where to go from here.