So Down:(


I am at my wits end and feel I am going mad. So mich anxiety and paranoia. GP and DBS nurse say give it time and up anti-depressants. Can’t cope with work. Poor hubby is a saint. Distancing myself from people. Any advice or anyone experiencing same as me?


I dip in and out of the darkness as I call it.
My only real advice is don’t take advice from anyone!
It is a unique illness and you have to find out what works for you. Your doctor won’t know, your neurologist won’t know and I don’t know what will work for you.
I take a mixture of prescription drugs and homeopathic potions that I find generally works for me now.
That can change so I am making the most of feeling good at the moment.
I have a wonderful psychologist who I resisted seeing for ages. He has got me just taking one day at a time. No worries about the future. No brooding about the past. Just make today the best day that I can. Sounds simple I know but it is the worrying about others that is my biggest burden. So I try to put myself first. Just have a good day today and forget everything else…
Good luck.
Never give up.


It is horrendous. I am on anti-depressants and have been referred to Mental Health for CBT but have been waiting a while, as very busy. So out of desperation I paid £60 for an hour’s session on Thought Field Therapy procedure and I felt fab for rest of day. There is daily mantras that I need to do, and I must admit, they take edge off it but it would be lovely to feel mentally good forever.

I totally understand where you are coming from regarding one day at a time, but sometimes that is so hard. I know mental health is a symptom of this hideous Parky and I feel, for me is the worst symptom.

Thank you so much for getting back to me.


I agree It’s easier said than done.
I’m still battling with it and maybe I’ll always be battling with it.
Have a good day.


You too! And thanks again x


Hubby is right that we are all different, and yet we do all stand on the edge of the dark pit. I’m sorry if the rest of this is trite, but keep busy, see people, and maay the forum always be with you!


He is right and so are you. Thank you so much for your support.


Hi everyone. Due to increased wearing off , less on time and the deep depression i felt during the off times, i have started with the Apo pump. I feel really unwell all day, every day. If i dont use the pump i go up and down all day and have suicidal thoughts. Using the pump i dont go up and down. However i feel so ill all day on the pump, at least during the on times i feel normal, even if it is only for 1 hour 4 times a day. Do I persist with the pump? Anyone had similar experience?


Hi juju,

I’m really sorry to hear that you’re struggling at the moment, it sounds like a very tough time for you right now. I’m glad that you are able to share your thoughts here on the forum, have you also been able to speak with your GP or specialist about what you are going through?

If you feel like having a chat with one of our Helpline team might be helpful, they’re available on 0808 800 0303 from Monday-Friday: 9am-7pm, Saturday: 10am-2pm. I also want to mention the Samaritans, who are available at any time of the day or night, they’re there to simply listen to and support you on 116 123.

Best wishes to you,
Moderation team.


I am starting to make the connection between the pd and my mental health issues. I had very bad depression 20 years ago which took a long time to recover from and anxiety has been an ongoing problem but I was only dx with pd in late 2017. I still have random mood swings and I’m starting to think the pd is behind it, there’s no other explanation though I still wonder how can people be so sure that pd causes them these sorts of issues? If the anxiety happens with wearing off then obviously there is a clear link but if not it can be hard to say for sure there’s a link.


So sorry to hear that you’re having a tough time. As has been said, everyone is different and what works for each varies.
Speak to your GP and here on the helpline. Get your meds right and make sure that your routine and timing of meds is what suits you best.
Exercise helps. Even if it’s in a chair (arm, leg, head exercise.)
Getting out if possible even if only a short walk in the park (or in a wheelchair) or round gardens. Animals help (great companions and gives you someone to care for).
Music - find your favourite songs that you really enjoy and get them on an iPad/iPhone, disc, or whatever suits you best so you can play when you need. Deep breathing exercises to relax, focus but also so you are actually breathing from the diaphragm
Good friends
Plan things you like so you have something to look forward to




Hi im going dbs assessment in a couple of weeks . I was asses3 before in tbe local hospital came of my meds the nighr before as planned and the next day my tremors were on holiday but they did rear their ugly head later . Im just worried that thus will happen again and the neuro panel will not see the real tremor in real time and say no yo dbs …am i worrying over nothing x


Firstly, don’t worry. You are doing the right thing by finding out ahead of your assessment. Unfortunately I can’t help but if no one here is able to help, contact your PD consultant or Dr or directly here to the helpline.

Good luck, I will look forward to updates


Hi, i can only go by my own experience as everyone is different, i had exactly the same as you, but when i talked to a lovely lady at Parkinsons helpline number she was so patient , asked me lots of questions, and finally arrived at the answer, i was so constipated my tablets which go through the intestines to work were not getting through after a lot of experimenting, which is still ongoing to find a solution, i am loads better.


Hi @eunice,

I’m really happy to hear that our helpline was able to help you and I’m glad that you’re feeling loads better.

Best wishes,