So tired and worried


#1

hello my mother has been told by her gp he is sure she has Parkinson shes had an mri came back normal , she cant have the ink one as she only has 1 kidney and it wont clear the ink her hand tremor has spread to both hands her legs are tight in the mornings and she has issues with bowels to neurology haven't even seen he yet and she is declining :in her health ;9 we hope to see a private consultant this week as she is feeling so unwell with it all has any one any advice please the shaking is depressing her so much :( thank you in advance


#2

Aye aye Tehya

poor mum it's not nice shaking , but am not a doctor although it sounds like PD it could be Meds , is she on anything else that might not agree with her ? Ach sorry but it could be anything all I can do is wish you luck. 

Ian 


#3

Hi tehya,

I'm sorry to read about your mother's recent diagnosis. It's a really stressful time for both her and you, but do know we are here for you.

We have lots of information and support on our website.

Please feel free to give us a ring on 0808 800 0303 (Monday-Friday: 9am-7pm, Saturday: 10am-2pm) if you'd like to talk to our trained advisers, including specialist Parkinson's nurses, who can provide information and advice about all aspects of living with Parkinson's, including her tremor and other symptoms.

Best wishes,

Ilona (Moderation Team).


#4

well we got told it is PD :( devastated x


#5

Sorry to hear that.    Find your local  group and go along.  Check out all the literature available . 


#6

there is so much to read i feel inundated , i am concerned about a few things does dementia always come with parkinsons?? etc etc i will ring when i feel i can face the call , this is hard for me as i had 2 children with battens disease a terminal illlness and feel i am yet again going to face more hurt 


#7
Sending you love and massive hugs....your Mum is very lucky to have such a caring Daughter.....wish there was a magic wand that could magic this horrible disease away xxxxxxxx

#8

Hi tehya,

We are so sorry to hear this. It is understandable to feel inundated, it is a lot to take in and it's important to take things at your own pace. So please do give us a call on 0808 800 0303 when you're ready, even if it's just for advice on where to start or to ask any questions you have. 

Best wishes to you and your family.

Joanne - Digital team. 


#9

thank you sweety xx


#10

thank you xxx


#11

Well at least now you have answers it can be dealt with , good luck to you and your mum we are all the same on here wishing you all the best on life's journey as we will all live a long time yet 

tooralooo Ian xx