My body is like a giant jigsaw puzzle with my limbs, organs and other body parts all jumbled up. When I want to move I must painstakingly rearrange the pieces into their correct position; this laborious mental effort completes the circuit between my mind and my body. Once this happens something releases in my body and I can move, like a dog straining at the leach that is suddenly given his freedom.
As I'm moving I can feel myself unraveling and becoming jumbled up again until the circuit is broken. Then I have to start the whole process again. As my symptoms have worsened the jigsaw pieces have become smaller, requiring more time to set in place. It is mentally and physically exhausting.