Hello everyone I haven't been able to be on here for some time. I just caught up with some post. I hope everyone is coping with their daily lives as best they can. And alls well.
I have been reading your post Maddie23, i'm sorry your having such a difficult time & becoming so anxious. I too suffer with anxiety bad & panic attacks/agoraphobia, and have found the last few months quite tough too. I am sure your support worker will be helpful to you & give you some reassuring words. Unless you suffer from bad anxiety/panic attacks & agoraphobia its hard for people to understand how draining it is for you to cope with things. Its an extra burden to deal with & can make dealing with everything seem harder. Parkinson's.com will be very supportive for you Maddie. Don't worry about calling them, i've found they have been very helpful, you feel comfortable to talk with them and they do understand about panic attacks etc. Having agroaphobia & panic attacks make it harder to join in with people & groups which we all need to do, but its a battle when having these problems. I have found that the hardest thing for me is finding people who understand what its like when you have panic & agoraphobia problems. Thank goodness Maddie it sounds like you have a good friend there that will be supporting you with your singing class, & i'm sure your support worker will help too.
I am always baffeled how my pd was diagnosed so quickly almost within 30mins, & i've had no dat scan. I was diagosed & put on medication straight away!?? It is a real concern for me when I keep hearing how everyone seems to be moinitered for a period of time before they have a dat scan or put on medication??
I keep being told by people I know & friends etc that it doesn't sound right to them, but i'm lost like you a bit Maddie, so I just do as i'm advised too & take what i'm told! That's another thing about having panic & agroaphobia, for me anyway, I will just accept what i'm told & do as told rather then get into things to avoid more appointments & having to visit places alone. You feel very vunerable!!!
I hope you will receive your scan soon Maddie & i'm sure you have found nice helpful people on here to reassure you too. Your visit with your support workers will definitely be helpful, & do give Parkinson.com a call if you ever feel you need too, I have when i've felt desparate to talk with someone & they have been there. Take care Maddie, & as I suffer with the same probs, i'd like to say a big well done to you for booking your singing & dancing classe's up that is really a great move forward. I know how difficult that must have been for you. Good on you & enjoy it. Your obviously a strong minded lady. I have just started physio & I find that an ordeal. Plus i'm planning to move to a quieter area where hopefully my medical advice & support may! be better. Our nurse's & doctors work so hard & have such a lot to cope with. Best wishes to you Maddie23 & everyone. xx