I had DBS in 2019, am on maximum settings, but still on meds (Stalevo) every 2 hours (8 a day). Some times, it seems that Stalevo not kicking in, as tremor does not go and dystonia kicks in. If you take Stalevo, you will know that it makes your urine look like Lucozade, however when Stalevo does not kick in for me, my urine is a normal colour! Like I said, does not always happen but normally happens every other day, and drives me mad. It cannot be food related as some days, I don’t eat much at all. Anyone else have this happen?