I have been on Stelevo now for around 2 years. I have also had Deep Brain Stimulation twice so not sure what impact that has. Am taking 150 4 or 5 times a day and struggling not to take them at night when I wake as they are the only thing that seems to stop the tremor. (It is 12 30 at night right now, and tremor will not allow me to lie down.)
They work well on an empty stomach and nuts seem to negate their effectiveness. Also dairy products but to a lesser degree.
At one stage I was taking around 7 and I started sweating at night and smelt quite unusual.
(The Neurologist said it was more important to control tremor after surgery but she didn't realise how many Stelevo it would take to do that)