Hi Cheshire Cat
Thankyou for your reply. Similar thing, things got so bad at work that the works occupational therapist, a trained nurse in her previous career, had to advise my dismissal, on health and safety, whilst the local drs were still sending me back between mental health and neurology becaue they both thought I was the other person's problem. Our local hospital not long after was put in special measures and both departments heavily criticised, I'm so glad to be under the care of the London hospital now.
I had a memory test by the London hospital neuropsychologist last year that showed cognitive decline and the movement disorder specialist wants it repeated before my next appointment. I still have all the symptons that put them on the pd route, tremor, feet gluing to floor, sleeplessness, teeny writing, etc, but I know there is things that mimic it, the parkinsonians?
I've got to the point I don't care what it turns out to be, so long as I know. Because I'm still working age but not fit to work I get really stressed at renewal of benefit time that all I can do is explain symptons and how they affect me, but can't tell what's causing it. And of course the first thing people tend to say is how well your looking, which of course I want to look good but I often feel that they are implying that they don't believe me.
Sorry to waffle on, I need to do something to cheer me back up today and at least I know I am with a good medical team that haven't given up on me because the first idea fell flat!