hi ,i also had dbs doing well my walking got bad & alot of freezing making me fall alot, my dbs nero put me on entacapone which made my sinemet last longer so more on time walking better then also added azilect which made a unbelievable difference to my walking hope this helps abit.
Know what you mean man I am 55 year old with pd but unless you have a big bruise or cut no one knows u what you are going through be strong and just do your best I also am just like you but I just plod on
You are right Parky is so much more than a tremor, it effects every aspect of our day and lives even if some of its effects is hidden to the eyes of those around us, there are worse more final things too have, but even this will be final in the end we just have a generous amount of time too live with it and the generous amount of problems it gives us.
I have had so many folk shove by me, on lifts, narrow pavements,, etc . Now I a walking stick. I don't use it to walk. Cos I'd end up falling over it. It's more a visual aid to everyone that I'm unsteady,freeze, stumble sometimes with a festernating gait, I'm liable to run into them.
The other thing is people's sympathy is short lived. I had persistent hiccups, for a week. In the queue at my local greggs, a builder was in front of me. 1st hiccup-went unnoticed, 2nd hiccup-turned and smiled, 3rd hiccup-ignored, 4th hiccup-turned and glared. It was a good job he was next to get served, or I'd be on the receiving end of a punch.
hi stobbs be very careful with your work its not to stressful as i was a plumber also carried on work with dbs ! stress made me tremor which i had to get reprogrammed ,went to work again same happen so in the end i had to give up work & my dbs i would say got symptoms more under control
Work keeps the head busy don't stew on things be happy
hello stobbs and all , i was dx may 15.when i finally met the neuro specialist ,.i had to actualy ask him if i had pd,because he spoke to me as if i knew ,and was ever so flippant about the dx...youve got pd off you go atitute..i walked out of there feelling lost..im learning theirs so much more to pd and certainly depression is a big problem...but i must say having a chat on this forum helps a hellova lot...your not on your own . hope thing get clearer for you
i had pd at 36 now 44 yrs old keep fit & heathy but never over do it.happy easter remember chocolates good for pd
Having only joined this group in the last few days it becomes apparent that we are all similar in age of diagnosis. Is Parkinsons becoming more common in younger people or is it the fact that the ones who frequent sites like this are of a computer literate age group, so thats why we only see similar ages? BTW has anyone had a DAT scan and if so did you experience any side effects?
Hello barnowl...yes i had a dat scan about a year ago , i didnt notice any side affects ,things were differant at the time because of pd dx after and some common side affects of meds...have you had a scan and noticed any changes ?...
Hey Smudger, No not really, i have my thoughts and theories but no medical knowledge. Over the years i have had to have various xray's, the DAT scan being 40 mins in duration was possibly a necessary evil but still a long blast of radiation. Not everyone has one of these to determine whether they have PD or not. I suppose the only other way is wait and see what develops method. Its done now but i won't be having anymore xray's unless no alternative.
Barnowl
hi stobbs where did you have your dbs too