I am submitting this note dictated by my very good friend ( Mikey P ) in the hope that somebody may be able to offer some positive advise for him.
I would much appreciate comments or suggestions regarding this communication
The reason being I have been suffering from Parkinson’s for 24 years, more recently over the last 4 to 5 weeks I have been experiencing excruciating pains in all my muscles, so much so it’s almost got to an unbearable degree.
In my recent consultation with a doctor he was not aware of anything in particular relating to Parkinson’s and advised me to speak to my Specialist Nurse, she’s only available 2 days a week and covers the whole of Cornwall.
I have since spoken to her about my concerns and she commented there is nothing common place about my condition it seems I’m forever going around in circles, one always seems to refer me to the other & vice versa
I wondered if anybody out there has had similar symptoms and what treatment was proposed, my condition is getting worse and worse and would appreciate any input you may be able to make
Hi @prpointonpenpal, welcome to our forum, and many thanks to Mikey P for helping you to get here. This is a friendly and supportive place to find yourself and I know other members will be sharing their own stories with you shortly.
I’m so sorry to hear that you haven’t had much time with your specialist nurse. Living with pain isn’t easy, but there are ways to manage this. I’d encourage you to explore our website including doing a search for Pain - there are many articles and forum posts that could be helpful, including this one which talks about different exercises.
If you have concerns while waiting to see the nurse, you can call us on 0808 800 0303. Our helpline and Parkinson’s local advisers can answer any questions you have.
Best wishes,
Janice
Forum Moderation Team
Hi @prpointonpenpal
Stomach spasms I asked the same thing answer could be but could also be other things. So here I go again of being sent to one department after another to try and find out what is causing it or as more usual what it is not.
I have had it for about six months now and though annoying it has one good side affect it has help me get a more defined and stronger abdominal muscles.
Hi Janice,
thanks for responding to my post, I’ve passed on details to Mikey P , hopefully your suggestions will give him some positive points to help
Regards
Paul R
