Strange behaviour- a feature of Parkinsons?


#1
Hullo Everyone. I am new to the forum but my husbands behaviour is giving me cause for concern. What shall I do Next? Changing a light bulb he cut the cable to fix new bulb more easily. Now he has taken the switch off the gas cooker and taken a burner from the hob and is trying to change their respective places. This is alarming me. He has been diagnosed for 15 years and talks normally so he convinces people he is o.k. But I know better Is there a test available to see the extent of his confusion. Thank you

#2
Hi ladygaga,
Welcome to the forum.

I don't know if possibly other carers on the forum have faced similar issues.

Do you have thoughts about what the problem might be?

We have very experienced nurses who specialise in Parkinson's on the helpline and they might be able to draw out other issues that you're worried about and they can provide information and help you to consider next steps.

The number is always at the upper right hand corner of the page when you're in the forum-- 0808 800 0303.

I hope this helps.

Ezinda

#3
Hello ladygaga,

I think you should not wait. See a neurologist: hasn't
he regular appointments? Fifteen years is a very long time and maybe he is developing something else. DO NOT WAIT!

Good luck

Natasha

#4
THANK YOU BOTH FOR YOUR writing back. I feel so out of my depth. Doctor said that it was a case of memory loss, when I went back in on a pretext without hubby. I heard today from another source that this was an euphonism for dementia. We are constantly rowing violently because he is wrecking the house, leaving each room with a chaotic mess of stepladders, tools, paint, wallpaper paste. etc. He cannot finish any job started. He has been 6 weeks trying to put up a strip light which he took down to "repair" and now cannot put it back up. I suggest getting someone to fix it and he flies off the handle. My mother had Parkinsons and fell about a lot He does not fall except when he falls asleep and then ends up on the floor. It seems to be a sort of narcolepsy, as he can fall asleep sitting up drinking coffee. My mother used to talk to her brothers and sisters (all dead) after setting the table for 6. She was picked up by a lorry driver walking in her slippers at 7 am in the middle of the main road.. She told him she was going to work. He said jump in and I,ll give you a lift. He took her to A&E thank goodness. Thats why I thought it may be a regular symptom of PD. I shall ring the nurse. thank you. A neurologist is hard to see unless the doctor recommends it. How do I get hubby to see anyone when he thinks nothing is wrong.

#5
Dear Ladygaga,

It may be that you've managed to sort something out as we are now a month since your post.

No, your H's behaviour isn't "normal" - I suggest you contact his GP to make an appointment (or the Parkinson's nurse (if you have one)). Keep a diary of his odd behaviours, and let the GP know (perhaps in a letter) just before the appointment. The GP may refuse to talk to you about your H due to confidentiality; but you can write to him of your concerns which he can read about it without discussing it with you. Then he is alerted to your concerns.

If your husband won't go to the doctor, it is possible to use a little subterfuge, say using the excuse that he is due a "well man" check-up, or medication review, to get him there.

It may be that the GP doesn't feel there is cause for concern, and take no action. It may be that your husband is referred for tests to check up on him. Whatever, keep that diary of behaviours - it is a useful way of keeping track on how things go, or whether there is a link with anything such as medication. Whatever, keep us posted and best wishes.