Struggling to get diagnosed

In the last 18 months my dad has increasingly showed signs of having Parkinson’s disease.

This includes hoarse voice, difficulty moving / shuffling gait, resting hand tremors.

However, after initial tests his NHS GP has ruled out PD. His brother had PD and a very similar trajectory in terms of the symptoms.

I am pushing him to get a second opinion, but unsure where to turn to. Any suggestions?

Thank you in advance!

Hello Dan … You might see a neurologist privately, costing about £25O.
The NHS can work extremely slowly.

Your Dad would be seen in under 14 days is my guess.

Best of luck.
Steve2

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Welcome to the group, @danoldershaw.

It’s really understandable to feel unsure in this situation – it sounds like you’re being a great advocate for your dad.

A good next step is to ask your GP for a referral to a specialist neurologist, ideally one with experience in Parkinson’s.

We have a really useful page on getting a diagnosis and finding support, which might help you know what to ask and expect.

You’re doing the right thing by seeking a second opinion – sometimes symptoms can be subtle or progress slowly, so having a specialist’s input can make a big difference.

Please know that you can also call our free, confidential helpline for support and advice: 0808 800 0303. Our trained experts and specialist nurses are on hand anytime between 9am and 6pm Monday to Friday, and 10am and 1pm on Saturdays.

I hope this helps! :blue_heart:

Parkinson’s UK Moderation Team

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I clearly have Parkinson’s but no formal notice. I can’t see any advantage to getting a formal diagnosis. I will have to deal with the DVLA. I don’t need meds yet.

I saw the NHS neurology consultant about 16 months ago. She said she would see me again in six months. No word yet.

But what benefit will accrue? I might as well enjoy the summer whilst keeping off the roads !

Best wishes
Sooty

1 Like

Hi Foxes, thank you for your comment. We’re sorry you’ve not been able to see the consultant again.

We have information on our website about what to do if you’re diagnosed with Parkinson’s and what your next steps are. It’s important you know you are not alone and there is support out there: Do I have Parkinson's? | Parkinson's UK

If you have any questions, please do call our helpline on 0808 800 0303 and our specialists will be happy to help.

We hope you do enjoy the rest of your summer. Please take care.

Parkinson’s UK Moderation Team :blue_heart:

Thank you for info Ben. I will refer to the guide, which sounds ideal for me
Sooty