I’m a Parkinson’s carer, who, selfish though it may sound, as I’m not suffering myself from this terrible disease, just feels at their wits’ end watching a disintegration before my very eyes. I’m convinced there needs to be a medication change, as for the past few weeks there has been a constant aggravation of symptoms alongside the emergence of new things. We’re doing our damnedest to arrange a review appointment, but it’s like banging your head against a brick wall (it sometimes feels like that literally and figuratively). And it’s the worst time of year as well.
It’s almost like being unmedicated - as if the levodopa’s having no impact at all apart from bringing on its side effects. 'Cause when it’s not the symptoms it’s all this drowsiness and sleep (something I get precious little of). And constipation, I mean?!?! We do all the good things for diet and fluid intake yet still there’s a problem with this blasted shit (excuse the pun).
Oh look, I’m just having a rant here - to vent. I’m new to this forum and am alone dealing with this situation - struggling, worrying, feeling like a failure, powerless to stop it. Maybe that’s because there’s a limit to everything, but still.
I’ve found a tonne of useful information on here and then some. Reading through some of you guys’ stories and what you experience, maybe our situation isn’t as bad in comparison. Personally, struggling though I am, I’m in awe of your mental strength and your capacity to endure. Maybe I just need more if myself.