So sorry to hear of your loss, we lost our mum on the 1st September this year.
She had been in and out of many hospitals for months beginning last October. Some of the hospitals were Community Hospitals, which were not .close to us, but we still visited regularly.
In April of this year they decided she could come home with a care plan, which involved 4 calls a day from carers....in a word...it didn't work well.
Mum became even more immobile until she spent alday in her recling chair unless one of us or a friend or neighbour took her out in her wheel chair, she was incontinent too.....it broke our heart to see, what had been a active lady, like this, unable to do anything for herself..
Towards mid August, she was obviously decling, one Friday I had a call from the morning carer to say she'd called the paramedics as mum had a unresponsive episode ( this wasn't the first) Paramedic checked her over and GP came out and said could be a UTI and gave her antibiotics. Later that evening the teatime carer called to say she was concerned, I rang our GP who rang me back and said he'd got mum a bed in a community hospital just for the weekend, I was very annoyed that when I asked the carer if she could wait 15 minutes until I got there when she replied "NO"!!....I literally pulled up infront of her and she never even got out of her car to speak to me!
The ambulance eventually turned up at 10pm, we went on over to the hospital (over 20 miles away) and waited for mum to arrive, (she had spent time in this hospital before ) so the staff all remembered her. At this point mum could speak, though was not hardly eating.
Over a week she seemed to deteriorate rapidly, she lost the ability to swallow and speak, one day I was told it was end stage Parkinson's and prognosis was 4-6 months.
On visiting on Bank Holiday Monday I could tell something was seriously wrong, I approached the ward sister who advised me to ring my brother ( my sister was with me ) and the Doctor would come and talk to us, they would also move mum to a private room. The Doctor told us it could be hours she had left.
We stayed at the hospital day and night. sleeping (kind of ) too, the hospital were amazing , there were vast members of family there at times, they did not mind at all and continued to treat mum with care, respect and dignity.
She held on for 3 and 3/4 days, and eventually passed away peacefully on 1st September with all of us there. We were and still are heartbroken x