I am suffering from suicidal thoughts most nights when I lie down to go to sleep, it also takes me about 3/4 hrs to get to sleep and during this time I may think about suicide several times. During the day I am not as bad.
Hi @Edd, thank you for your post. We’re really sorry to hear about how you’ve been feeling. Please know you are not alone and we are here to help you.
We highly recommend reaching to the Samaritans who are available 24/7 on 116 123. If you’re in immediate danger, please call 999 for the emergency services. You won’t be wasting anyone’s time and it’s important you get the support you need.
Our free and confidential helpline is also available to anyone affected by Parkinson’s: 0808 800 0303. And is available Monday - Friday 9am to 6pm and Saturday’s 10am - 2pm. If you’re happy for us to contact you please send us a direct message and we can arrange for a member of the team to give you a call.
Please take care and reach out if there is anything we can do. We are here for you.
Parkinson’s UK Moderation Team 
Edd have you got medication to help you sleep? My husband has been prescribed melatonin by the consultant. Try contacting your consultant tomorrow
Thanks I have booked an appointment for Monday with my GP
Where I intend to discuss this with her
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I decided to tell my wife how I was felling, I was holding back from doing this, and I think it was making it worst.
I felt my wife had enough problems without me adding to it.
We both sat down and talking about it and the future into the early hours. This has help a great deal.
To anyone else out there with the same problem, talk about it to someone close, it helps.
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Hi.
I spoke to my Gp today and asked about Melatonin I was told it was not licensed for general use by gps in Scotland. Apparently the SMC who are equivalent to nice in England are still studying this drug, So I have hit a brick wall.
Also the GP said anything to do with PD must be approved by my consultant.
I have been put on a neupro patch 4 mg it help a bit. So it looks like I must wait to see the consultant, which I am not due to see her until dec.
Ok sorry about that. Maybe you could find an email address to contact the consultant to get a quicker appointment? It’s mad how difficult it is to get hold of the right people. In the end I phoned the neurology in the hospital and they were able to give us an email address. We got an appointment with the consultant 2 days later. Hope you get some help
Hi @Edd. I just saw your post and wanted to check in, see how you are doing. Have experienced suicidal depression since childhood, but I’m still here. For some reason, following my parkinson’s diagnosis, I am now less depressed than I’ve ever been before. My wife, too, is my confidant, and I would to join with you in encouraging folks to share. Very best wishes to you.
Hi
Thank you since speaking to my wife it has helped a lot.
Though I still having problems with sleep.
I have their phone no for the secretary, but like speaking to a wall. I dint think about the email approach, I get right on to it on Monday.
Good, hope that helps
Hi @Edd
“I spoke to my Gp today and asked about Melatonin I was told it was not licensed for general use by gps in Scotland.“
That’s nonsense mate, I’m in Scotland and I was prescribed it last year and collected it from my Pharmacy the same day!
Speak to your PD team asap or see a different GP.
Cheers
D
Hi thanks,
Was it prescribe by your gp or your pd consultant
Also did you find the drug helps
I’m pretty certain it was my GP because i had a prescription slip. That said, he may have spoken to them first but I don’t know that for sure. I did get the slip from my surgery though. It is readily available up here on prescription.
Unfortunately it didn’t work as well as I wanted. I did sleep a little longer but the rest of the day I was so sleepy and groggy, I had to stop.
Cheers
D
PS, I distinctly remember the chat with my GP about it as they mentioned something about not to use it long term, so it wasn’t added to my ‘repeat meds list’
Cheers
D
Hi
Thanks for the update, that ties in what I heard else where.
You have been of great help and I appreciate your comments.
I will do some more investigation to see if there is anything else
That my help
Cheers
Try and find out if there is a Parkinson’s Group near you and contact them. I have one about 10 miles away but not contacted them ‘yet’.
Not sure of your circumstances but I recommend plenty of exercise. I joined a gym and work out 2-3 times a week sometimes just once tho 
. I do cardio and weights. I’m 57 and was always very fit even after I retired from the military. Sadly age , PD and unfortunately cancer has depleted my fitness somewhat but I can still get a good sweat on and feel it the following day. But what it does for me physically and mentally is incredible. It’s something to focus on and the endorphins it releases lifts my mood, once I get my breath back 
. Even a good brisk walk around a nice park or walk path somewhere, fresh air and (occasional) sunshine on my face helps too.
Cheers
D
I found a group nearby about 3mls away I plan to make contact with them. I also started going for a walk before bed.
Excellent. If you can, try and get out for a while during the day too. I had a low time last December. You know what it’s like up here, light at 9am, dark by 3pm. They call it Seasonal Affected Disorder (SAD syndrome) which can lead to depression, low mood etc. So this Winter I’m trying to avoid that by getting out in the daylight more and also taking my Vitamin D (available on prescription from GP, called Stexerol). Speak to your GP. Mine thinks all Scotlands residents should be prescribed it because of the lack of sunshine up here in Winter 
.
Cheers
D
Hi Dusty
I been on vit. D for about 6 months. I am also a sun worshiper liking spending time in the garden, to the point I had to have 2 small skin cancers removed this year, nothing serious. I been told I should use factor 50 on my face even in dull weather.
I am trying out using a vibrating heat lamp for 45 minutes on my legs and arm at night now. Interesting for the three nights I used it I had very little restless legs during the nights.
I am monitoring this and plan to post my results after about a month.