Support group for adult children of people with Parkinson’s

Living with Parkinson's Carers, friends and family
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Hello everyone,
I wanted to introduce myself and share an idea I am exploring.

My father was diagnosed with Parkinson’s around ten years ago. Since then, I have become aware of how much of the emotional impact of this sits with adult children, often quietly and without a dedicated space to talk about it. While there is great support for people with Parkinson’s and for carers, I have personally struggled to find something specifically for people in my position.

I am looking to create a small, informal support space for adult children of people with Parkinson’s. The idea would be a monthly online Zoom catch-up, focused on sharing experiences, feelings, and updates, rather than advice or clinical support. Simply a place to connect with others who understand what this is like.

At this stage, I am sharing this to see whether people feel this could be beneficial, either for themselves or for someone they know. If so, please feel free to pass this on to friends or family who you think it might help. Anyone interested is very welcome to comment or message me directly.

Thank you for reading.

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Hi @Francesco_C. A warm welcome to the forum.

I’m sure what you’ve described will resonate with many people.

It’s great that you’re framing this as connection rather than advice – sometimes being heard by people who “get it” is what’s needed. We hope others here will see this and feel able to reach out, whether for themselves or someone they care about.

Thank you again for starting this conversation. It’s an important one, and we’re glad you’re part of the community :blue_heart:

Parkinson’s UK Moderation Team

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Hi Francesca I would be interested. I find I have so many questions and observations which just don’t get answered, but could just be reassured with discussing with other children of Parkinson’s sufferers. The relationship has changed so much with my Mother

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