Support with work issues

Hello

My name is Katy, I was diagnosed with early onset parkinsons 2 years ago at the age of 44, I didn’t really have time to take it in as my father died suddenly and expectedly 6 months prior then my mum and nephew were both unwell. I was initially managing my symptoms ok but they seem worse the last few months, I am very scared as I work full time as a paediatric a&e nurse and no longer can fulfill the duties of the role, my manager has used the term ‘burdening the team’ and i am worried about loosing my job as i have a mortgage and bills to pay, I live alone, i was so proud 4 years ago to achieved buying my first property without help, I have no family support as my mum is mentally unwell and my siblings dont care, i have been crying alot the last month and having panic attacks and unable to work, im looking to be redeployed but work say they arent obliged to help me, i am not really qualified in anything else and have been refused PIP Twice, i feel so alone as cant find anyone my age that understands and neurology support is hard to access.

1 Like

Thank you so much for sharing your experience Katy and welcome to our Forum. We are so very sorry to hear about your experience; it must be such a worrying time for you so it’s understandable that you’re feeling alone. You’re not alone though, and we are here to help.

We have some useful information on our website around working with Parkinson’s, which you can find here: Work and Parkinson's | Parkinson's UK and which may be useful.

We’d also encourage you to reach out to our helpline where our specialist employment advisers can answer any questions you have about work and Parkinson’s. You can call us on 0808 800 0303, Monday to Friday: 9am to 6pm and Saturday: 10am to 1pm.

We hope this helps Katy and we send you our best wishes. We’re here with you.

Take care,

The Parkinson’s Moderation Team :blue_heart:

3 Likes

Katy, this sounds awful.

Have you looked for legal advice - if you are in a union contact them.

The other bit of advice worked for me - join a choir or similar local group. It will help.