Hello, I haven’t posted here for some time but now have a problem I’m finding very hard to cope with. My mum, who’s 96, has had her Parkinson’s diagnosis for about 5 years although my view is that she had it years before that.
Anyway, she has deteriorated recently in a number of ways which are difficult in themselves to cope with, but in particular the range of food/drink consistencies she’s able to swallow safely has reduced dramatically in recent days. She’s just out of hospital yesterday following an aspiration episode and has had all the usual assessments by SALTs, OTs etc, who have advised that we should continue her regime of Stage II thickened drinks and wet pureed food. Nothing else to be done. She seems to be managing anything of yoghurt/baby food consistency, but fluid swallow is really not working. I don’t currently feel able to research what to expect next, but guess that this is an end stage syptom. I can’t imagine that she will be out of hospital long like this and there will be a limit to the number of times they’ll treat her with antibiotics. I’m going to find it very hard to let go, this has been a monumental battle, although I know it’s one that’s probably common with this disease.
I appreciate this might be something that’s better tackled off the Forum, but with the weekend coming up, I’m feeling very lost. I can’t get enough fluid into her unless there’s a way of making it more “solid”. Does anyone have any experience of this, please? If I make Ensure into a mousse, is it still a “drink” once the person swallows it? Is jelly? I do realise this is clutching at straws and hospital staff all but said not to bother. But she’s fought this horrible illness so valiantly - and how can anyone just watch a parent choking?
Sorry if this all sounds a bit dramatic, but neither of us is a quitter and I’m not sure how to tackle this until maybe I can get some help after the weekend.
Any ideas welcome.