Hi all my consultant has hinted if i like to try medication for my tremor i find when i sweat its worse in evening he recommends carbidopa levodopa would this help my tremor and how long to take effect from 1st tablet weeks,or days or hours or does it depend on each person’s
I take Sinemet, which is a carbidopa levodopa medication and I get a lot of improvement in my tremor. The effects started within days of taking the medication. However, I’ve read posts here from people who didn’t get improvement to tremor from this and also from people who’ve noticed improvements within hours of taking their first tablet so everyone reacts differently.
For me it was almost instantaneous.
Hi @calv1960 ,
You may find the following resources useful in answering your questions:
https://www.parkinsons.org.uk/information-and-support/levodopa-co-beneldopa-and-co-careldopa
https://www.parkinsons.org.uk/information-and-support/parkinsons-drugs
You could also ring our helpline and ask to speak to one of our nurses to discuss your questions. Please give our helpline a call on 0808 800 0303 Monday-Friday: 9am-7pm, Saturday: 10am-2pm (Closed Sundays/bank holidays). Or email us at [email protected]
Many thanks,
Tash - Moderation Team
Hi i have been taking carbidopa 12.5/50 levodopa for 2 wks this hasn’t touched me at all very disappointed i was asked by my gp to try for a month due to the results should i phone my gp earlier or wait the month bit of a dilemma
Hi @calv1960
I can’t answer that unfortunately, maybe try calling one of our nurse advisers on the number above.
Tash - Moderation team.
Hi tash i have already spoken to my neurologist about this matter thx
Hi i have been taking 6x12.5/50 sinemet 3 times a day have been pn thos dose fpr 2wks 4x wks in all still no difference in my tremor i find this medication useless i have no symptoms but tremor feel good in my self fairly fit ,active, just very disappointing in so called golden medication i am seeing Parkinson’s nurse next week nort really hopefull at moment
Hi all have been taking co careldopa for 3 months now still no change but since taking pills my kidneys ache is this normal also have a aching back around my belt area could be due to kidneys aching
Hi @calv1960
Sorry to hear you are still experiencing aching symptoms.
I would recommend that you seek advice from your GP or Parkinson’s Nurse as they have have specialist experience, knowledge and skills in Parkinson’s, and will be able to make recommendations based on your condition and symptoms.
In the meantime, you can contact the Parkinson’s UK helpline on 0808 800 0303 or by emailing [email protected] for more information and support. Our helpline is a free confidential service providing support to anyone affected by Parkinson’s and they can put you in touch with a Parkinson’s nurse to support you further.
Kind regards,
Emily - moderation team