Telling my grandchildren


#1

Hi all! I've been caring for my hubby for 12 years now and his symptoms are progressing quite rapidly. I feel the time has come to try and explain to my grandchildren who are 10 and 6 in more detail what is going on. At the moment grandad is just a bit shaky. I don't want it to get to the point where they shy away from him but I'm at a loss as to how to approach it. Does anyone have any suggestions which might help? 


#2

 

would these be of help ?? something for them too read and then come back with questions you could answer?if so i think you can order them through from P.UK Aimed at 3-7 yr olds perhaps isnt ideal ??.


http://www.parkinsons.org.uk/news/19-november-2013/telling-children-about-parkinsons-our-books-can-help


#3

 

on looking further there is some for older children & teenagers guide  you can download all of them to see if its a suitable way for you http://www.parkinsons.org.uk/content/talking-children-and-teenagers-about-parkinsons

hope its been helpful.


#4

Thanks sea angler I'll have a look. To be honest at the moment any help is good. It's not something I'm looking forward too! 


#5

Hi kooky04

I told my grandkids as they soon as they noticed and asked about my symptoms, I kept it light and simple just a loose outline of what it was and how it affected me, 

Iv not told them I have Lewy body dementia as my children will help them with that when the time comes, telling my children I had Lewy body was difficult .

  Live Well.  Cc