I'm 20 years old and my dad has recently been diagnosed with early onset Parkinson's. He's not even 45 yet and he's already struggling to move around, can't remember things that happened yesterday and is unable to really communicate properly. He's developed a sort of OCD behaviour and has been slowly suffering for about 2 years now. He recently moved and that lead to a new doctor actually diagnosing him whereas his old doctor sent him for dozens of tests and found nothing. He sees a social worker quite frequently, goes to a daycare center and has physiotherapy. I really can't fault the care he's been given since he's moved but he lives 2 hours away from me now and it's very difficult to go and see him because I'm not a confident driver yet.
I'm so worried that he's going to forget who I am. Soon. I'm aware that it'll happen eventually because he's also got some form of dementia. His father had Parkinson's and his sister has Alzheimers so it seems to be running through the family. I'm not close with his wife and he's unable to tell me what's going on so I'm kept pretty out of the loop with all the information and I'm just so worried. He's so young and I have Parkinson's in both sides of my family. My father and his father and then a cousin on my mum's side. I'm so worried that I'll get it too and with my dad being so young it makes me even more terrified.
I'm half the age he is now. Is my life half over? Should I really be thinking of having kids one day if I'm capable of passing it on? What about my dad? He's going downhill so fast and I just don't know what to do. Nobody else really understands I guess so I just wanted to let my emotions out somewhere that would understand. I can't help feeling selfish for being more worried about myself than my dad right now but I just need some security. It's so much to get your head around when you're still so young.
Any help or assurance would be so appreciated.