I am sad to read about your dear Mother as you will have known I lost my lovely precious Mam,best friend, walking local encyclopaedia,and Matriarch of our family,so i do feel your anxiey and endless worry , so Dolly (LETS ALL GET UP AND DANCE TO A SONG THAT WAS A HIT BEFORE YOUR MOTHER WAS BORN though she was born a long long time ago YOUR MOTHER should know,, your Mother should know I was playing one of my GREATEST BAND EVERs albums this morning and this song took me back to my teens and all the happysad times that I ,,, WE ALL OF us go through,yes Dearest Dolly at the stroke of midnight September 1963 young FED became a KEVIN age 13 my poor Mother and Dad of course were completely flummoxed baffled horrified, their youngest child had gone to bed kissed his Mam hugged his dad and all was well in the FEDS home , not for long, Things were amiss when Mamma FED couldnt seem to wake her lovely kind gentle wouldnt hurt a fly ,,??young FED she had called him three times ," FED GET OOOTA BED IF YAH WONNA GET FED" my Bro was home on leave for 5 weeks R C T Airloadmaster , and we were best buddies ,oh how that was about to change T B C
Hi Dolly - I'm as well as can be expected just today had Sinimet added alongside Ropinirole meds. but ok otherwise!! Sorry to hear about your Mum, and yes the care homes are an expense it's disgusting, but as long as you find one that's caring and she is happy, that's what it's all about. You do what you can for your parent/s as they get older out of compassion and for what they sacrificed for you ,but also you have to think of your own health and don't overdo it. Hope all hubby's tests come back with a good all round result. We keep ourselves busy being retired, making the most of it, going here there and everywhere, the calendars full!
Thanks for the chat, take care both of you - Sheila x
As I was about to say before I rudely interrupted myself, Mamma FED could not wake young FED and instructed SGT K FEDEXLIKE R C T, renamed from R A S C or Run Away Someones Coming to remind me that it was a schoolday (monday) now when I tell you that my Brother was 8yrs older than me and had always enjoyed sadistically awakening his young sibling using many and varied techniques for as long as we had been Brothers,, his favourite was belting me with his cricket bat (I sawed it into 6 pieces) which did not go down well as it was signed by all the NUFC yes I know he also had a football signed by all the Yorkshire Cricket Club,, such was life in our family, so where was i ,,OH YES well deep inside young FEDS young brain a brain cell awakened and fortunately it was one of six controlling memory and it again fortunately , remembered the subdued rumble, like distant thunder and quickly roused his fellow cells , the effect was instant, AIRLOADMASTER FED, was about to inflict pain on young FED ""ALARM ALARM RAOUS RAOUS ALARM ENGLANDER, FLIGER ACHTUNG SPITFEUR,,22 ALARM well I was learning GEERMAN at this stage, so by the time my delightfull thug of a Bro reached the top step of the stairs young FED was waiting and SGT K was struck in his fizzog by young FED (I had my own cricket bat), now I cant remember much more but I do remember that delightful sound of willow on contacting ball ,, or skull iin this case and I also remember well TBC
I WILL CONCLUDE TOMMOROW as this laptppot decided to go night night so I shall do same or it will go into low earth orbit I had completed the story f???????it
Well just as all hell was about to break my Mother intervened telling me to get off to school and giving my brother and dad the order to get my Brother to the docs to get his nose stitched and of course we all obeyed as always, she was a Gentle Lady but if we crossed her,, well we didnt simple as,we laugh about it now but it was always Mam who held sway, now she is gone I miss her very very much, so heres wishing all is ok with your Mum Dolly you seem to be under constant fire as I am so I wll be thinking of you mate.
I have two PD friends who all of a sudden declined into mental instability and ended up in nursing care even though their physical health was good.One did fall when he got out of bed at the home the other not much further along than myself.They both had delusions involving infidelity of their spouses.
I told them this is not common with PD but more to do with the meds,to much maybe.Today families belive more what a doctor says than a fellow parky.I mean what do we know,?LOL
here in the states memory care homes are mushrooming all over and many advocates are beginning to think there is a problem with all this dementia talk.
My mental health is sound more so than before PD and I hate to see others victimised by oversruplous nursing homes.How is over the other side of the pond?
I stumble every day at a varible rate of 2 to 10 times and fall (not heavy 5 to 8 times ) and (fairly heavy) 3 times, and well you can guess the last two John , I fell heavily this very have the most savage terrifying crippling pain in my lower back and down both thighs, my left leg has been increasingly painful starting last JULY I will have this date branded in my memory banks 3/7/2016 this date I prayed would never visit FED TOWERS a two bed ex council house, sorry but I dont want to stay on this particular date so I introduce alittle silly into the postto try and lighten the mood, my Dear Mother passed away on that date John after a short illness,in a way It was a blessing as she was showing definate signs of dementia and I have to tell all who may read this I am wracked with guilt, the reason was or is this I am her youngest child at 66, then theres my Brother, 72 this the same Brother who nicks my Raybans,then the new matriarch of our family my Sister,when I brought up the fact that she now heads up our very close , if a little strained band of Brothers and Sister 14Great Grand children and 9 Grand children my Bro lives in Oxfordshire so it takes a while to reach us in Northumberland my Sis lives about half a mile away but my Brother visits more than my Sister, hence the strain mentioned earlier Im going to post this now as its showing signs of needing to take light so
Right where was I oh yes, FALLING (me) and GUILT(also me) as I can only move around my home doubled up like a giant paper clip my forward vision is limited due to the fact that millions of years of evolution shaped all hunter killers with eyes front and not on top of our heads ,extinction awaited for those poor creatures who preferred the top of the bonce route , anyway, I am often in need of the loo in our 1/1/2 yr old extension built to my specification and thus it was ths morning 745am I was in need of the facilities so set off from my comfy chair bent double as per, I opened the door and as my legs totally disobey all signals my left leg decided it wanted to try being my right leg for a while about 9/10s of a second actually ,but this was sufficient to l aunch old FED at high velocity into the washbasin securely fixed to the wall,(I HAD NOT planned for this) I was in the strange world of the bewildered for a while but ok now John in fact I have a appointment with a Neurosurgeon at NTGH in 1hr with I hope a plan to stop the pain in my back.
Hope you get good results from your doctor.I know what a bad back is like.I injured mine severely (hernia disk)I had a good therapists who gave me a good plan and while it took over a year the pain is gone but it does return if Im careless and do the wrong thing .
I have a friend who is advanced probably like you and he suffers also.he has severe stopped posture and Im sure that plays into his back troubles.I have exercises to help avoid it if I do them.Ive fallen like you a few times but haven't broken anything .Im sure it was caused by delayed responses we get.
many people suffer excessive guilt after a death.Being guilty and feeling guiltily are two different things.You sound like a good man who visited his mother.Men are also never satisfied with their acts so keep that in mind when you beat up on yourself.Nervous people"s favourite pastime is self torture.LOL
Well have a good day hope the ladopa pump you got is helping you
many mornings i wake up with anxiety.Usally I get a message of my mission for the dayLOL
Funny isnt that.haha He does have a great sense of Humour
Its injections, right into my spine dont have a appointment yet but soon methinks as I was in pure agony and its under GA as I become very animated by dyski when Im anxious or upset so he must use GA as I must be absolutely still as the nerves that control my feet legs bowel and bladder are all in the vicinity and knowing my luck, so Im very anxious .
The guilt thing with my Mother is there because she had fallen the previous night and lay all night on the floor , the thought of my precious Mam suffering like that well Its to much especially as it was my wife who found her the next morning as I was crippled with parky otherwise I would have been there, she was taken to our new Hospital at Cramlington where she was placed in a side ward, only 100yds from where she started her life with my dad the houses PIT ROWS are all gone of course and I tried to tell her but she looked at me and said "Not Good Son not good it was not long after she began the great journey,she left us but I needed more time I wanted to tell her I loved her and thank her for her kind gentle upbringing of her youngest she was always my role model, dad was a hard working miner but also a hard drinker, never missed a shift and died horribly with his lungs almost solid black lumps " the dust "at least they will be together now mam playing the Piano with Dad and all her friends dancing, oh the New Year parties we had all gone, nothing lasts forever eh,, I thought Mam would.
Oh Fed, what a sad but beautiful story :( I'm so sorry for your loss. Sons and mothers have a very special relationship, especially as you were her baby. I lost my Dad in April, but thankfully my sister and I were with him holding his hand. He couldn't speak anymore, but tried to write what he wanted to say. He could barely hold a pen, but managed to scrawl, 'Long sleep...bye bye' and some kisses. I will treasure that piece of paper for the rest of my life.
You are going through such a lot with your own illness....sometimes it makes you wonder if there is a god?
sorry to butt in i will keep it short as per, god you two can write type what ever ! its about your pain injection most probs a epijural this is what i have done every six months for the last 7yrs also facet joint injections for lower lumber thats from lifting cast iron baths up the stairs with a sledge hammer through plug hole & over my back idiot well what im saying is all my nerve endings are shot so i take gabapentin max 12 aday also 3 amitripyline bedtime ,now i get back to the injection they say only have to rest for a day , but if you can rest at least a day on your back ,then try rest for another 2 ,as if you think about all the injection is doing paralysing the nerve endings and if you stand up or just sit in a chair after injection the solution will run down the spine & may not target the point as well as letting it settle and target where its meant to probably anyway i find this best as a lot of people who have had it said its not that good ,then when i tell them what i do rest they said they have had better results ! hope this helps wow thats the most i have typed and i reckon i could have said it in a couple sentences thats the parkey how do you fall i go down like im going to get ready to throw the ball for skittles THE SWAN DIVE just wondered if you had a name for your fall lol
Ar?e ower Elbow gus, how I have not fractured any bones is a miracle really I am hoping against hope that the treatment works old friend as the only way I can move around is bent double this destabilises me and down I go, I get very angry with myself , it has happened in the shops also and there was such a fuss so you know the old saying ( EVERY CLOUD HAS A LIVER SIDLING) oh thats not right burgerrr,, so I dont go to the shops now, I never exited the car, just sat and waited for beloved to return 8hrs later
do I feel guilty, no!,, I hated shopping, going in a shop and seeing exactly what she wants but must try elsewhere and elsewhere ad infinitum then when she goes back to the first shop they are sold out,, AHH?/?/RRG @@### LL, SO i DONT GO NOW
Did those jabs work incidently, Im in having a Duodopa MOT on the 8th you will probably hear about it in the papers (GEORDIE FED SCREAMS A RECORD, LOUDER THAN A SATURN 5) read all aboudit
Yes Im afraid I do not have religious leanings never had, I remember sittting in R I age 9 or 10, thinking,(hang on ,curing the blind making the unwalkable walk curing nasty ailments NOT PARKY ,oh I think someones fibbing a bit and raised my doubts with Mrs Green the teacher teaching us, I was sent to Mr Morris MATHS , so I kept my gob shut after that, though now I envy those who believe as they have the big guy to help, I dont, but if he reads this post as I could do with a lift at this time also I was sad to learn of your Dads passing, its so hard to bear I will get something on my mind and pick the phone up to phone Mam then it hits, so so sad. Very best wishes
I had a epidural shot for my spine.Just one and it was awful,the shot,pain and much more pain after the shot.
The worst was about a week after the shot my jerks started up.I was told by some doctors it wasnt the shot but it was just a week and I havnt found anyone else that has these jerks
beware of epiduals for the spine as they are not approved for this use.
Thàt is very true epidural are not approved but been doing them from day dot as i said rest a couple of days on back and they work great fed this is key for getting full affect out off them trust me i have parky
This year has been good to me regarding Ive gone backwards with meds since I added comtan.I was taking 7 25/100 now Im done to 3 along with half a pill of comtan.I also take a 50/200 before bed.
I ve been active in many needy area and have a feeling as long I have a purpose destiny has been slowed down a bit.Im sure After our worst election on record there is a cloud over our future.The best way I could describe some of the acts done by the guilty party is what a lynching mob must have been like years ago.The far right needs to know they cant get their way in bulling people and going backwards in history.
The man is a true nutter a Strangelove very real danger to our world surely there must be someone in your a great land who would be a superior leader , but then again who would want to lead this crippled world away from WW3 which is on the cards, Tom Ha forgot
nks, ? he did ok in SP RYAN , oh he was killed in that sorry
This experience you shared about your dad...i found beautiful on so many levels..refective of how he felt toward you and expressed in the most basic yet meaningful way..using few words to convey a life time of..being as father..im just touched beyond words...I can only hope and pray that i might be capable to also express to my daughter under the same circumstance such enduring and artfully put sentiments...I dont know you, but appreciate you sharing this personal moment and will draw from the lesson that it sends..Peace be with you..
Hello Doll
As I was about to say before I rudely interrupted myself, Mamma FED could not wake young FED and instructed SGT K FEDEXLIKE R C T, renamed from R A S C or Run Away Someones Coming to remind me that it was a schoolday (monday) now when I tell you that my Brother was 8yrs older than me and had always enjoyed sadistically awakening his young sibling using many and varied techniques for as long as we had been Brothers,, his favourite was belting me with his cricket bat (I sawed it into 6 pieces) which did not go down well as it was signed by all the NUFC yes I know he also had a football signed by all the Yorkshire Cricket Club,, such was life in our family, so where was i ,,OH YES well deep inside young FEDS young brain a brain cell awakened and fortunately it was one of six controlling memory and it again fortunately , remembered the subdued rumble, like distant thunder and quickly roused his fellow cells , the effect was instant, AIRLOADMASTER FED, was about to inflict pain on young FED ""ALARM ALARM RAOUS RAOUS ALARM ENGLANDER, FLIGER ACHTUNG SPITFEUR,,22 ALARM well I was learning GEERMAN at this stage, so by the time my delightfull thug of a Bro reached the top step of the stairs young FED was waiting and SGT K was struck in his fizzog by young FED (I had my own cricket bat), now I cant remember much more but I do remember that delightful sound of willow on contacting ball ,, or skull iin this case and I also remember well TBC
Well just as all hell was about to break my Mother intervened telling me to get off to school and giving my brother and dad the order to get my Brother to the docs to get his nose stitched and of course we all obeyed as always, she was a Gentle Lady but if we crossed her,, well we didnt simple as,we laugh about it now but it was always Mam who held sway, now she is gone I miss her very very much, so heres wishing all is ok with your Mum Dolly you seem to be under constant fire as I am so I wll be thinking of you mate.