Good evening everyone. I am 71, live alone and was diagnosed with Parkinson’s just over 2 years ago. I have a number of unknown health issues that aren’t Parkinson’s the experts tell me. Anyway I had an Mri scan on my Liver and Spleen 16 days ago as
I had three “lesions” that were possibly cancerous. They told me results would take
2 weeks and I have just had this [below] on Patients know best the NHS app where results are sent.
Imaging date
21 Aug 2025
Source
East Sussex Healthcare NHS Trust
Report
The report will be available on 03 October 2025 at 12:37
So nearly another month to wait and I am obviously concerned so I phoned the hospital and left a message. They were very good and phoned me back the following day. The lady said she had the Mri results and has sent them to Urology. I should contact them. So I phoned Urology and was told the person dealing with this was away and will not be back till the end of September. So I phoned back the original lady that had sent my Mri scan results … Yes, she said she had the results in front of her, but was not allowed to tell me what they were. Could she get a more senior person that is authorized to give me the results? No she could not.
Could she not tell me if the results are clear? "“No.” Does the fact that she cannot tell me mean the results are bad? “No”, she said.
Thank you for sharing your experience, Steve. Waiting for important results, especially when facing uncertainty, can be very stressful. Currently, NHS waiting times for MRI results can vary and some waits may be longer depending on the service. It sounds like your case is being reviewed by specialist teams, and while it’s frustrating not to get immediate answers, this cautious approach ensures you receive the right care. Please keep following up with your healthcare providers, and don’t hesitate to reach out for support if the waiting becomes overwhelming. You are not alone in feeling this way.
Rhea - that’s one way of looking at it. In my view it’s a shockingly poor experience and the site should be calling it out as such.
Sure, it’s important that the patient gets the right answer, but do you not think there’s another possibility, that the patient ends up getting care that is delayed to his detriment? I have witnessed this several times myself with family and friends in the last year.
We all know the NHS is in a poor overall state - and that all within it are doing their best - but please don’t sugarcoat when it’s not appropriate.
Now you know how things go in threes ? Or at least twos …
On Monday morning I woke up with chest pains at 1am. The pain was on my left hand side above my left breast. A fairly wide area and it hurt more if I moved my left shoulder or head. A sort of 4/10 pain, nothing really bad, so I put up with it for the rest of the day. It certainly didn’t feel like a heart attack as the pain seemed in the wrong place, not that I’d know.
I thought about going to A&E but hours waiting did not appeal so I phoned 111 for advise.
They asked me some questions and then said I needed an ambulance so that they could assess me.
The ambulance arrives with a couple of fun girls … I sit in the ambulance and they do an ECG which is fine. I say sorry for bothering them can I go now ? They said they wanted me to come to the hospital for blood tests … So I went with them …
The hospital was really busy with all the beds in triage taken so I sat in the waiting room for an hour or two, then another normal ECG and blood tests. Back into the waiting room for another 8 hours waiting for a doctor to see me. This young man in his 20’s gets another blood test done which he says shows it wasn’t a heart attack and I can go.
He suggests I contact the Neuroskeletal Unit for physiotherapy LOL !!!
Taxi home arriving at 9am.
The concern for me is that no effort was taken or will be taken to find out what the pain in my chest is. It is still as bad as it was. Do I just ignore it?
Frustrating. Is and understatement. My hwp was complaining of headpain and pins and needles, his ward dr wanted him sent to a and e with ? Stroke. Took 12hrs for ambulance, 4hrs in the car park, not seen by a dr for a full 24hrs after initial referral. Ct scan brain done next day( today). No stroke, bloods ok, medically fit to return to referral hospital… just as well…some much for speed is very important…
I would like to balance things a bit. I had a stroke during the night. I woke at about 7am Sunday morning, wife rang 999. I live in a village. But a medic was here in less than five minutes. Ambulance ten minutes. Off to the hospital about five miles away. Staff were in the ambulance park to greet me. Straight in to a special section with a young nurse sat beside me. At one stage she panicked and thirteen medics were round my bed in seconds. False alarm. Senior nurse came to see me and tell me she would stay with me until we got to the ward.
With a stroke, they can give you something within 4 hours of the stroke. I was beyond the four hours. A long long rehab but I was pretty much recovered within two years.
If only that experience was typical of today’s wait wait wait fiascos.
Best wishes
Sooty