The uninvited guest and his friend

The Uninvited guest and his friend
It was suggested to me to write small blog on my latest adventure in life, I have been living on my sofa, we have a good relationship, it moans at me for fidgeting, due to the discomfort of sitting there most of the day, due to chronic fatigue, and lockdown imposed by my condition and medications. I have sought advice from my doctor and Parkinson’s nurse, my new adventure started with quite a lot of blood test, which were normal but they wanted to further investigate high iron content I n my blood, after a good few months I was informed by letter from my doctor that I had hemochromatosis, deep joy, a real Brucei bonus, this could be one of the reasons for my fatigue, I had never heard of this apparently both m parents carried the gene and it is hereditary. I was keen to find out all about this disease looking at the various websites which can be good or bad, I like to know the enemy so it was good for me to investigate, the condition is treatable, the treatments are uncomfortable, something called venesection which is removing blood from the body to lower the iron content. So, I have been informed that I must go to hospital every week for 18 weeks to have blood removed, there are other treatments which sound horrible, but if left the condition can have serious complications. So my first visit was on the on Friday the 6th of august, I was not looking forward to it, but cheered myself up thinking that I would get a big slice of cake after I had given my blood, not the case regulations done , they always say it will just small scratch but that is not the case I must be a wimp, however the nurses were absolutely fantastic and explained the procedure to me, it lasted about 15 minutes, I then rested for quite a while I was really thirsty and feeling weak, my wife gave me a banana and some nuts which helped me to recover, I was also wearing off and I get really bad about twenty minutes before my medication, the next question is how this will affect me with the medication accessing the brain through the blood, we left the hospital I was very weak and the legs were heavy, and I was not focusing right, I would just like to emphasis again how excellent the staff were at the liver centre Portsmouth QA, it was really reassuring. My wife drove me home she is an absolute angel for what she does for me, Friday night I was stuck on the sofa I did manage to eat my evening meal which is a good thing, I was falling asleep on the sofa, on the Saturday we had people visiting, I was totally out of it, stuck to the sofa sleeping and totally not with it, normal day , I was totally drained, Sunday was not much better I did manage a small walk because I was going stir crazy stuck on the sofa. It took me about four days if not longer to recover, I must change my diet to ensure I do not eat or drink food and beverages that have iron in them, as my levels are high, I have been on the venesection for about three weeks, I have also had my medication for Parkinson’s reduced ,I am really weak and have no energy at all ,my day last about 2 hours 10:30am it is back to the sofa hello my friend another long day of sitting I know there are members with far more difficulties than me. I hope this is of interest to someone

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