Tremor


#1

Does anyone ever get internal tremors been getting them for a while now will talk to the pd nurse when I see her just wondering if this was a common problem.


#2

Hi 1970,
I don’t have a major noticeable tremor during the day but i do notice that i have internal tremors when im first lying in bed or tired.
It’s sometimes like an out of body experience, as it takes me a minute to realise its me that’s shaking.


#3

Thanks for the reply yeah that’s exactly what it’s like it’s definitely more so when I’m tired


#4

Hi @1970 and @Divine1 I find first thing in the morning it feels as if my whole body is shaking, or if I get very tired or very stressed It is a most peculiar feeling and I feel as if it should be very noticeable but my OH has never commented on it. I have mentioned it to my neurologist but he did not make any comment.


#5

Thanks for the reply yeah that’s exactly what it’s like oh doesn’t notice anything feels like my head and inner body is shaking like I said will talk to the nurse


#6

I have an internal tremor, its so strange, thank god for Hobgoblin beer…


#7

Haha


#8

hi, I have an internal tremor , especially in the morning around 5am . Before I was diagnossed I told my missus I’m sure there are earth tremors every morning. Now 1 year on since diagnosed its in my head and upper body every day, especially when I’m tired or stressed. Hate the one in the head , i’m sure its worse becouse only I can feel it and nobody else can see it. This is on top of other symtoms.
I also agree Hobgoblin Beer and Vodka helps.


#9

Hi 1970,
If that’s your birth date,i am 6 years ahead.Anyway,internal tremors.I’m having the same.Feels like a state of internal anxiety that only goes away on max medication.Or other forms of relaxation.Anyway,feel your pain.One thing though,Anti-depressants help and reduce tremor.From experience,and why back on Anti-D’s.
Take care
Titan


#10

Hi titan
No it’s not my date of birth wish it was good to talk to someone with the same symptoms thing is I don’t want to take anymore tablets I feel like I’m taking enough as it is thanks for the advice though will talk to the nurse when I see her next and mention what you said by the way I’m 54


#11

My left leg is doing its own thing this morning, so I’m off to the pub to watch Newcastle beat Arsenal.
I’ve got a disabled persons bus pass, its almost worth having an incurable brain disease…Bet your jealous…


#12

Haha​:joy::joy:


#13

Hi 1970,
When i was diagnosed,the first thing my Neuro wanted to start me on,along with Azilect and pramipexole,was anti-depressants.The AD’S,mainly to regulate mood.I resisted them for a few years.Then felt the need,so started.However,had to go through a mine-field,when finding an Anti-depressant that didn’t contra-indicate the Azilect i was taking.All to do with seratonin levels etc.At the time my Neuro had no idea of this.So i independently went through a Psychopharmacist ,who came up with the safest option “Mirtazapine”.
Anyway,that is another massive story,covered on the history threads.The point is,it wasn’t until i stopped the Anti-depressants after nearly 2 years.That i realised how significant they were in masking my tremor.This could be helpful when trying to keep pd med dosage down,at least for a while longer.
So now i have been back on the Mirtazapine almost a year again.Plus Neuro’s know that they are useful in external tremor control and that dreadful internal one.
Hope you find a solution.
Oh,and you are the exact age as me,54.
I was diagnosed in Nov,2009
Take care
Titan


#14

Hi titan
Really appreciate your advice … like you said you waited at first I think that’s the route to take waiting until I really need it I take pramipexole as well it seems to be working for me at the moment though I am very stiff in the mornings but once I take my tablets after a bit of movement I’m fine my job is physical so that helps to keep me moving it’s when I stop your years ahead of me I was diagnosed last October after the datscan came back positive to be fair sometimes I still can’t get my head around it