I am newly diagnosed and I was completely unaware of what | would describe as an excruciating stabbing pain that happened to me last week. I had expected dull aches as muscles and joints stiffened and movement became harder but I never expected this sharp pain that literally stopped me in the street and left me screaming in a uncontrollable pain.
The stabbing was in one position, didn’t move and didn’t rise or fall in intensity. Putting weight on the leg or taking the weight off by sitting on a nearby wall had no effect. Over the next ten minutes or so I attracted the attention of passers by and the concern of my carer who was in a panic as to know what to do with me. The pain then stopped, not suddenly but over a few minutes and we managed to get home moving at a snails pace. Since then I have had a couple of slight (very slight) twinges that lasted less than a minute or so.
I obviously then did a bit of reading up on Parkinson’s pain and found that it was probably a nerve pain. Does anyone who gets this have any suggestions as to what to do when it strikes. I have never experienced pain like this and quite frankly am terrified of it happening again, is there any medication that carry with me that I can take when it strikes? Has anyone any tips to help manage it when it happens.
I was prepared for aches, stiffening, immobility but I never dreamt of such incredible pain, nor had I read of anyone describing a Parkinson’s pain this severe. I have only been recently diagnosed and have had very little chance to find out how other people deal with the pain.
Does anyone have any advice please.