"As people we value different things in life and that affects the choice of meds that we use. "
I dont understand how different life values affect medication choices?
i have never had a choice in my medication and I have never been asked what I value in life either.
I do know of others who were given the choice of medication on the day of diagnosis, which seems an incredible thing to do.
Based on the 50 or so pwp that Ive met over the years I would say the variety of medication and the treatment process varies wildly across the UK and the information given to pwp is very hit and miss too.
It is difficult for neuros when prescribing because the information they base their treatment on is based on feedback from the patient. Just because one patient is doing well on the day of a clinic and another isnt can be for a variety of reasons, even if both are recieiving identical treatment and were diagnosed at the same time.
eg If one of the patients has eaten a full english breakfast before his levadopa then he will likely be in a different state to the other who realises this is a problem and avoids it.
It is likely that neither were informed about the importance of timing levadopa to avoid wearing off.
I have attended clinic when Ive been unable to walk but this was not due to progression of the illness but probably one of several things such as a sleepless night or being lazy in taking my pills. In fact I walked out after drinking a strong coffee. A remedy I picked up from other pwp and which my neuro recognises, but never mentioned to me. I did not adjust my medication and have not done so in the 18 months since it happened.
Yes we are all different in many ways but i see so many who accept that as a reason for increasing medication when things aren't working out without investigating the processes that are common. eg levodopa is absorbed in the duodenum, to get there the stomach has to empty, high protein meals will delay the process.
There are patients out there who are doing well with pd whether it be because of what they do or slow progression I cant be certain but i think it would be wise to find out and if they are doing the right things then make them known to all of us.