Had my initial appointment with the Neurologist in Harrogate and was declared “PARKY”, 3 months later am told “NOT PARKY”, this has gone on for 10 months, my GP sent me to a different hospital in Middlesbrough who stated yes it is “PARKY”, I am taking Citalporam 60mg, I see hallucinations and have unsteady legs, recently went deaf and have musical tinnitus, has anybody had these problems ? Help Required



Hi David

Sorry, can’t offer any help, bu do sympathise with this on/off diagnosis. Have you had a Datscan? I was told that this is the only definitive way to get a diagnosisi. If you haven’t had one I would push to get one, if, like me, you wan to know exactly what you are dealing with.
Good luck, and let ue know how you get on.



Hi @Boots2422,

I’m sorry to hear that you’ve been experiencing all these symptoms. The hallucination may be a side affect to the medication that you’re on so you should definitely raise this with your GP or Parkinson’s nurse. We also have a lot of information on hallucinations on the Parkinson’s UK website which you can download here, https://www.parkinsons.org.uk/information-and-support/hallucinations-and-delusions-side-effect.

Regarding your other symptoms, you can speak to one of our advisers via our helpline who can offer you more support on this. Please feel free to give them a call on 0808 800 0303.

I hope this information helps.

Best wishes,



Off to the GP tomorrow, will ask about a Datscan, keep you posted.