On Thursday I had an appointment at the National Queen Square with Prof Bhatia. Those of you who have read my past posts will know that I have had a hard time with neurologists since I became ill in 2005. Most of them have been very dismissive, and some of them downright rude! But that wasn't the case this time.
Prof Bhatia was very kind, he didn't talk down to me or jump to conclusions. I felt he listened to me and was thorough with his examination. He had a number of neurologists with him who he is training in movement disorders, so no doubt they throw in there opinions after I left.
As my presentation is atypical he is ordering a DaTscan for me to rule in or out PD or a PDplus syndrome. If this is negative I'll need to examine the whole idea of my illness being psychogenic, which I will find hard to accept as I cannot get my head around the idea that I've some how I've thought myself into being so unwell. Especially as I've not suffered major trauma and I'm gaining absolutely nothing from being ill. In fact I've lost loads. But I'll cross that bridge when and if I have to. At least if it did turn out to be psychogenic there would be a good chance of recovery. I feel very confident in Prof Bhatia, so I will try and remain open minded.
The good thing is I don't think it's likely to turn out to be a PDplus syndrome as I've been ill for nearly 9 years and from what I've read life expectancy after the first symptoms of a PDplus syndrome is 7-10 years. If that's the case, I would at least be bed bound. Although i'm struggling to get around more and more each year, I am still able to walk around the house even if I usually need a mobility scooter if I go out anywhere.
So all in all my trip to the National was well worthwhile, my past experiences there were really bad.